Showing posts with label mental health. Show all posts
Showing posts with label mental health. Show all posts
2019/01/30
Gratitude - 1/30/19
I've got a lot going on right now and my head is overfull. So I've been counting my blessings today.
1. I am grateful that I live in America. I am not happy about what is going on with our government and the serious cultural systemic problems, but I am relatively safe. I don't live in a country where I can easily be put into labor camps or hurt in other torturous ways - like North Korea or China. For that I am grateful.
2. I am grateful for amazing co-workers. I am grateful for my amazing job. I need more hours and I am going to have to figure that out but I have no complaints about the work environment and the fine people I work with. That makes me pretty content.
3. I have an amazing friend. My best friend is so supportive and cares so much that I want to try harder to be well in my life and to do better. Everyone needs that kind of friend in their life.
4. My ex and my son are pretty amazing. I am grateful for supporting family.
5. I am grateful for warm clothes and warmth in my home, It is really cold out there right now and I am able to be warm and out of it. Not everyone has that luxury.
6. I am grateful that I have my furry companions who take such good care of my mental health. I have no idea what I would be like without them.
7. While my ankle hurts, it is holding itself together. I can't complain about that.
What are you grateful for?
Labels:
best friend,
blessings,
Bug,
cat,
co-workers,
companion,
daily life,
ex- husband,
family,
Friend,
Gratitude,
luxury,
mental health,
support,
warmth
2018/03/11
Spanglish
It's funny how a movie can just make you feel so confused and so many different emotions that you just don't feel like you can even think because you're having to try to figure out what everything means.
For fun tonight I thought I would listen to a movie while I did other work and I soon found drawn to the couch and there I huddled- tired and hungry, but unwilling to go to bed until the film finished. What I had thought was going to be a very light-hearted and silly movie was something a lot more serious and a lot more thought-provoking. Most of the films I've seen with Adam Sandler have not been serious films. In fact, if anyone had asked me that question, I would have would have told you that Sandler really didn't make them. All the films that I can think of that he was in are ridiculous, silly, flighty, and fusty stuff. Films that you might watch once to enjoy the terrible humor and then never watch again. The only film I've ever watched of his before now that didn't feel that way was "The Wedding Singer." I will admit it's one of my favorites. I find myself not really interested when I see a movie advertisement that Adam Sandler is in not really interested in because it didn't occur to me that he would have another film that was anywhere like The Wedding Singer... It seems like most of his film sound like "Click", "Happy Gilmore" or "Billy Madison." I'm climbing into bed after this film and I feel torn between the couple who is trying to stay together and isn't sure that they should and Adam Sandler's character; a steadfast hard-working man who's trying desperately to keep his relationship together even as he can see someone who would treat him better in his peripheral vision. Watching the way that the wife manipulates and destroys so many pieces of her whole family and pets and needs the entire world to revolve around her and then says things like "why doesn't anybody care about my feelings"... and all I could do is sit there and watch the train wreck in action. I regret watching this film right now as the reason I put it in was to have something that would make me laugh, but I don't regret watching the film. It was very thought-provoking and I go to bed thinking many things and a brain awash in multitudes of emotion. If that was the director's goal then he succeeded.
Have you ever seen the film? What are your thoughts?
Image from: http://www.imdb.com/title/tt0371246/?ref_=ttfc_fc_tt
Labels:
"Spanglish",
"The Wedding Singer",
Adam Sandler,
confusion,
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emotions,
family tensions,
feelings,
Love,
manipulation,
mental health,
movies / film,
relationships,
self reflection,
steadfast,
struggle
2018/01/13
Too Much Dreaming
Some days are just really really tough. Even when things go right if you sleep really really poorly then nothing really works out very well. Last night I had horrible dreams. Sometimes I'm able to forget that I have PTSD and then I'll go to sleep and I wake up a few hours shaking and sweating and unable to actually recognize that I'm in my own bed and everything is safe. It's a really, really weird thing. I have dreams of policemen coming into my bedroom when I'm sleeping and dreams of my mother sitting on me and folding me into the living room floor in front of friends. I have so many dreams of different things that have happened that really seem to stick and even when I think I forgotten them they seem to come to back to life at night. I keep trying different medications to forget that they are there and yet they still just seem to come. Sometimes I'll go a whole week without one and I can actually forget for a moment that I have them and then I go to sleep and they're back.
All you can do is force yourself to wake up and take the several seconds needed to realize where I am and then try to calm down and remember that everything is okay now even if it wasn't okay then. I've had family members say that I shouldn't talk about this becasue what happened in the past is a personal family matter and you don't share these things with other people even if it is on an anonymous blog where most readers do not know who you are. However, I've never found that anything is successfully solved without talking about it and acknowledging the problem. That's one of the things that I watch people do at church in the past where it's just easier to tell people that have problems to ignore them or pray them away instead of listening to what their actual problems are and trying to help them solve them. Sometimes whatever is easier is not what's right and sometimes the only way to deal with something... no matter how messy and awful and painful it is... is to really talk about it, chew on it, take the time to really remember it for what it is and then try to put it behind you. The more you push something down and try to pretend its not there the more it grows and festers and poisons your soul.
I would truly love to forget so much of what is in my head and I am sort of bothered that I seem to forget so many things that are useful and I can't seem to forget the past. My doctor told me once that PTSD is not a person who is unable to forget the past... It is really that the past along with the experience and emotions of that past will not let go of the person in the present. I will admit that no matter how hard I try to forget things some of them just will not go away ... and they may not show up in my everyday mornings, but they will show up in the night when it's dark and quiet and I feel peaceful and relaxed... and then I'm blindsided by them. I sometimes wish they would go away and sometimes I'm scared of what will happen when they do because I wonder what else worse will come out of my mind.
I wonder sometimes if it is easier to have the same few dreams over and over because at least when I wake up I'm now in the habit of trying to shake them off and trying to calm down. It's sometimes throws me for a loop when I see and hear something old but feels 'new' and I wake up and I can't forget and it seems to take an eternity for me to realize that I am in bed and I am okay. I guess that's one reason that I love cats. If you wake up and you're scared and you're shaking, there's always somebody who's going to come over and ask to be petted and will rub against you to let you know that they are there. I feel quite comfortable embracing my 'old cat lady' persona because they do give me so much joy.
I was reading a book yesterday and one of the characters told Hamish Macbeth that he clearly didn't want to find love. Elspeth felt that what he really wanted was only companionship and if he only wanted to be alone and stuck with a dog and cat for his whole life then that was his choice. At that point, Hamish was really offended and stomped off in a huff... As I read that paragraph, I will admit that I am okay with that for the rest of my life. I think I am more than happy to take companionship over any kind of expressive love with someone else just to have my own place... to be able to feel peace and to have a place of my own that is quiet and safe. I know some would see that relationships of companionship are lesser, but on nights when I wake up and I'm shaking and I'm cold and I'm scared and I'm sweaty and I have no idea what to do I realized I'm also grateful for being alone because I don't have to share this with anybody else anymore. My ex and my son sleep and they hear nothing because they are no longer here. For that I am sometimes intensely grateful.
Labels:
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PTSD (post traumatic stress syndrome),
reading,
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2017/10/18
Self Care.... Filled with Hormones
I have been struggling this semester. I think there are a few reasons including feeling a lot less motivation with the loss of my grandpa, work health problems... the usual suspects. I tried to work on some homework but I seem to be unable to concentrate on either history nor interdisciplinary studies so I found myself roaming my shelves for something to read. I have agreed to try and take some time for self care- I'm quite terrible at it and I am working to do a little better- and I have decided that some of my self care should include stretching and fun reading. My eyes slid down the rows of books and then stopped on my nutrition textbook. I have never been willing to get rid of it because I sometimes find myself using it as a resource for trying to understand comments from my doctor better or even as a resource for a history paper. So, amusingly enough I hauled it to the couch (We can't say I picked it up because it's huge) for a bit of 'light, restful reading. I found myself quite frustrated by the reading so please take that in mind when I discuss my thoughts below... I guess it wasn't very restful reading.
I entered this chapter with little knowledge about hormones and how they affect the average person’s body, and by extension, my own. I have listened to doctors chatting about my hormones to my parents from about the age of 14 onward. In almost every doctor’s appointment that I attend as well as incidental evidence in my own life, my hormones are in control of me… and not me of them. I see menstruation and the whole process of hormones in a very negative light. As early as 18 years old I wanted to get a hysterectomy to try and end at least part of the process. The only thing that has stopped me from a hysterectomy is money... and if I was offered the opportunity to have it done tomorrow and have it paid for...I would not hesitate at all. As mentioned in the text, some of the societal and cultural ideas around menstruation are definitely alive in my mind for I too believe that I am filthier and more disgusting during the time of my menstruation and I want to avoid people and try to do anything I can to hide it. I don't talk about it much and I used to go to great lengths to hide any evidence including sanitary supplies from any one in my home- I even used to hide it from my husband when I was married... which was challenging and sure looks foolish from where I stand now. The way I think sure has changed... as evidenced that I am try to talk about it here. I found myself a bit bemused to read the words on the pages in front of me such as “One Indian phrase for menstruation is the flower growing in the house of the god of love” and “when researchers looked for positive changes in the premenstrual phase, they can find those as well." I haven't found those yet I guess.
The chapter listed a lot of research on women's health as well as hormones and sexuality. I suspect that the reason there appears to be so much research focused towards these topics is that hormonal changes are seen as an overall negative in quality of life for the majority of women. As Americans live in a fairly patriarchal society and women are not seen or treated in many cases as equal to men, focusing on the differences- and perceived negative differences- makes perfect sense. In general, if we look for the bad over the good that is what we will find. As a history buff, the discussion of women, women’s health, and sexuality have been seen in a negative light throughout many cultures and ages in time. The text also mentions that religion can also play a role in how hormonal changes, menstruation and reproductive activities are viewed and treated. It seems clear to me that many cultures and religions view the unique actions of women's bodies as problematic and use social pressure to control these actions, using members of both genders to create and reinforce this pressure. Another thing that most people who practice medicine have noticed that wasn’t mentioned in the text is that there is gender bias when it comes to many serious problems such as pain, heart attack, etc. How a person is treated when experiencing these disorders can vary widely based on the gender of the person experiencing them and that bias tends to create more negative outcomes for women than for men. What these facts and ideas say about our culture are not great. If the perspectives and biases in our culture and society tend to be more negative towards women, their health and potential in our society, it shouldn’t come as a shock that more studies are focused on the negative aspects of women and their health when research is being discussed, funded, and developed. If society sees men unconsciously as physically better and less hormonal as the male gender has no outward appearance of hormonal changes as stated in the text, then it also makes sense that research is much less likely to turn its focus toward men. Research in general tends to start with the spark of an idea on how something works, an idea of how to change something, or even how to fix a problem or perceived difficulty. If a culture in general is unable to recognize that men’s hormonal cycles exist or that they are important, no funding or time is going to be focused on that as it will be seen as waste of time and resources. I think that creates difficulty for both genders as men’s health and experience is ignored or undervalued so that problems are not recognized and potentially helped and women find that that their health and the study of their health is focused more on the negative aspects of it – or perceived negative aspects- and less on the positive traits and aspects of the health differences.
If more research was focused towards men and their health as well as hormonal cycles, I believe that we could gain knowledge that could be quite beneficial for men and the health problems that occur for them. However, it must be acknowledged that the majority of all medical research is focused on men- just not hormonal research- and it is vital to start including women in these processes. Excuses for leaving women out of health studies include the perceived 'variability' of their hormone cycle and the 'uniqueness' of the female body's functions... which feels a bit like a cope out. After all, the majority of all of our bodies- male and female- work and respond the same in similar circumstances.
I am not sure that reading this was really good self care or if I found myself distracted and worked up about something that really isn't super relevant to my life right now. But I found a few things that I was interested in researching at some point. I wonder how much of my health problems is based on some of the external influences the text mentioned. Do I feel more pain because of hormonal changes or because I feel like I ‘should’? Do I feel dirty and awful because of my sensory disorders which cause challenges with the physical sensations… or do I feel that way because I have been taught/ influenced to feel that way? Are the mental symptoms of confusion and personality ‘changes’ really a part of the hormonal changes, part of what I expect to happen, or pieces of both intertwined in the perspective and package of me? Certainly interesting questions to ponder this evening. Although the ponder must end soon as the guys are headed over. :D
What are your thoughts?
2016/07/13
Praxis Project Reflection
This semester, I have found myself pulled in many different directions. Between emergencies with friends, medical tests and physicians mumbling around me, I feel like this semester has flown by so quickly I haven’t gotten more than a few glimpses of what I was trying to gain… like a hummingbird I see the beauty and remember it but I have to keep going over my notes and writings to really pull up the clear full image that I had in front of me. I changed my ideas on a project a few times over the weeks from blog post biographies on my favorite feminists to a newsletter with basic articles for on different aspects of feminism…. to my final and completed project of resources for Maine individuals who identify as LGBTQI.
This project came about when an individual finally discovered that her fear of her husband was also her children’s fear… she discovered that he was hurting the children as well and they were terrified their father would kill her. She pretended to be ‘normal’ for two days while quietly making plans with friends and the moment her husband left for work on Monday with the only car, she walked out to meet a friend with her children and hasn’t gone back. She was lucky and even though the struggle with the courts is all encompassing still, they are safe. Those two days were awful, with several people trying to find what resources there were out there for her. Domestic violence resources are supposed to be prolific – and they are- but out of almost 50 searches, over half had disconnected numbers, were closed, had lost funding, were full and unable to help others, or even had very strict limitations. That same week, some of the readings combined with this particular experience, caused me to push aside what I had done and begin again. I wanted to see what resources that there might be pulled up on google and spent two hours writing up every source I found for LGBTQI resources in Maine. My goal was to create a comprehensive list and hoped that I was able to fill a few pages of solid and available resources to pass along to the university.
I learned a few things from this project. The first was that as I had predicted, most of the resources that I had carefully listed were either no longer operational or if they were, I had no information to find any new information for them through follow up searches. However, as I just started cold calling different people and organizations, I not only found more resources but also found people who were collecting some of the same information I was looking for. I found individuals who not only were enthusiastic that I was willing to spend the time creating this resource and were willing to help me, but were hopeful they could have a copy of it when completed to help community members near them. I had conversations with one group who was saddened that I had found them by accident and gave them ideas on my search so that they could try and make their organization come up in search engines instead of my lucky referral from a lawyer’s office. I also worked on it at work and as my project became locally known, I had a co-worker and a few patients quietly pull me aside and hand me a paper with an email or a phone number on it. I ended up having to leave resources off the list due to time constraints (I could probably spent another 25+ hours and have twice as many pages), but I feel really good about what I have. I was pleasantly surprised at how many resources there are around… even though so many parts of Maine are rural and far flung. I was also a bit surprised to find some organizations carefully not answering some of my questions and I realized that they didn’t want to be a resource, but could not come right out and say it – due to their funding models, personal opinions, etc.… (I did leave those groups off the list.)
I discovered that in some ways, those who identify as lesbian, gay, transgender, bi-sexual or intersex may have extra difficulties in finding resources and support even in areas that are known for being ‘liberal’. While there are so many resources, finding out about them was a significant amount of work and took quite a few resources to find. It appeared to me that just like my anonymous 'individual', when you are in a tough place, you really do need people with some social privilege and resources to help you find and access what you needed. I think this project was as successful as it could be with my limited time frame and the blinders of my own privilege- after all, I did choose what resources I left off the list due to time constraints… I have to wonder sometimes how things did or did not make the cut. I am hopeful that this assignment will have the forward removed by UMA and be copied and distributed wherever is appropriate. I am hopeful it will be useful to someone. Thank you.
picture from: http://all-free-download.com/free-vector/download/abstract_rainbow_background_vector_148022.html
Labels:
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daily life,
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Maine,
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privilege,
research,
sexual identity,
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2016/07/11
Introduction to my Intersections Praxis Project
The next few days, I will be putting up two pretty large posts so I thought I would introduce them here. Last semester I took an Intersections class and we were able to make a choice as to a large and convoluted semester project. I am afraid I sent quite a bit of the semester trying to figure out a project and then came across my project idea from a comment at work and some contemplation. The project I chose was to try and develop as comprehensive a list as I could of LGBTQI resources in the state of Maine from emergency services to longer term mental health and medical services. The first post will discuss how I came up with the idea and how it became a reality and the next post will be the full list that I came up with and turned in for a grade. This list is accurate as of May 2016 and while it is missing a lot- due to lack of time or imagination, I wanted to share it here to make sure it is accessible (hopefully) if someone needs it. If you are reading this and want to add or change a resource, please feel free to let me know. :)
2014/08/27
Do You have Sensory Problems?
I do... have for as long as I can remember. I didn't always understand why some parts of me were different from other people nor do I always understand some of the ways I respond now. Some ways that my body may respond to a stimulus I still do not understand... but I accept it and sometimes laugh about it... and sometimes cry about it... and sometimes I just shake my head and shrug. In the end, my processing challenges are a part of me and make me the unique and wonderful individual that I am. That said, I was in my thirties before I was even heard the term sensory processing disorder / sensory integration disorder and researchers are still trying to understand how these disorders work. I thought that I would take a few minutes to talk about the basic human sensory system and leave you with a small list of questions that you can read and, if interested, can use to look at your own behavior and responses to different stimuli and determine if you too, might have some sensory processing challenges. :)
When I was growing up, I learned about the five senses: touch, taste, sight, hearing and smell. The sense of touch as processed through our skin and taste processed inside of our mouths.... the sense of sight which is processed through our eyes and sound through our ears... and the sense of smell through our nose. And each of these organs sends the information to the brain for final processing so that we can use the information. In the processing the information is organized in the brain so that we can use it to make appropriate responses to external stimuli. For those with disorders of the sensory system, the organized information may not create the correct responses.... the child who reaches toward a snarling cat and is genuinely confused when the cat hurts it... the person in whom fear causes hyperactivity or out of control behavior, etc...
So let's start with some basic questions. Here is how the questions work. Each question should be looked at by thinking of how often you perform the behavior in question. The more often you do it, the more likely it is that your brain is having some difficulty processing the information in a 'neuro-typical way'. Is that a problem? Not necessarily... it really depends on how my your behavior in this regard affects your quality of life.
1. Do you prefer the dark, happily avoid bright light and feel happier in dim light? Do you find that you are bothered by light when others feel comfortable?
2. Is it difficult for you to accurately visualize images or objects in messy or cluttered backgrounds? Do you end up staring at objects overly long to process the information?
3. Do you find it more challenging or impossible to complete tasks with noise or music in the background? Do you find yourself easily distracted by noise or even seek out noise or make sounds simply to have noise around you?
4. Do you avoid noise or sounds? Are you slow to respond to sounds around you that are relevant and important... an inability to recognize what sounds are important and to block out sounds that are not?
5. Do you have difficulty processing really strong smells? An inability to smell odors that the people around you can?
6. Do you find yourself feeling large amounts of anxiety or anger when your expectations or your routine has to change? Do you find yourself doing tasks in inefficient ways because it feels more comfortable to you? Do you move from one activity to another not completing any of them very quickly?
7. Do you prefer to be alone? Prefer quiet activities? Quiet areas and places?
8. Do you have problems with textures in food and limit what you eat based on what the food feels like? Do you crave certain foods due to flavor or strong smells or will you only eat certain foods?
9. Do you have problems with touching or being touched? Do you react emotionally when being touched by people or things such as water, unnatural fabrics, etc.. or do you crave touch and will touch too much and too often?
10. If something touches you such as clothing, are you able to 'forget' the touch.... or do you feel the clothing and its touch all day in part of your mind? Do you go barefoot because shoes feel uncomfortable? Do you fill your hands with things so avoid people touching your hands?
11. Do you seem to have an awareness – or lack of awareness- to pain or temperature that is different from most other people? Can you injure yourself and find that the pain is not at the level that it should be for the injury? Do you feel comfortable in a snowy environment in short sleeves?
I could definitely go on and healthcare providers who try to help their patients with sensory issues will ask many more questions than this.
One challenge that comes with sensory problems is that as someone struggles with them and they find the way they respond is so different from other people, it affects the individual's emotional well being. People with sensory problems appears to be more likely to develop low self esteem and self critical behavior. They are more likely to exhibit socially inappropriate behavior as well as difficulty expressing emotions in a healthy way. The odds of having problems with anxiety are a lot higher in this population making a challenging situation sometimes worse. I will admit that I find it challenging sometimes myself.
This post is so basic that I beg of you to not make any diagnosis or take to much out of it. I just wanted to take a little time to introduce the topic to start a little basic awareness. If you want more information, please feel free to leave any questions you want answered in the comments or speak to a medical professional about your thoughts. Both of these diagnoses are still debated by healthcare professionals so if you would like more information, be sure to find a provider who has studied and has knowledge of both sensory processing disorder and sensory integration disorder and the nuances between them. Thanks for sharing. :)
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SPD (Sensory Processing Disorder),
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2014/07/10
Journey Forth #6 : The Accidental Relationship between Gluten and Casein
When I was first diagnosed with celiac disease and started to research the disorder but also the foods that were available, I ran across many people who started pushing me towards a gluten free-casein free diet not only for myself but for Bug as well- we both have the disease and I think he can thank my genes for that ;) I was skeptical and I am still a bit questioning about some theories behind the diet. This particular diet is recommended for many people with celiac disease and other food allergies and it has become one of the diets of choice for individuals with autism and other developmental disorders and is sometimes recommended for people with mental health disorders such as schizophrenia. So I'll cover the basics of both. (Can I stress that I am wading into territory that is not firmly entrenched in science or statistics yet.)
The basics of this diet are that the individual not only avoids gluten but also all foods that contain the dairy protein. Some need to do this due to a true allergy and some people report that they have reactions that are similar to gluten intolerance when consuming the dairy protein. This protein can be found in butter, cheese, cream and milk, as well as yogurt and countless other products including chocolate, lunch meat or other prepared meat products and other non-dairy products. Symptoms of a true milk allergy are very similar to gluten intolerance as well as wheat allergy and celiac disease so trying to separate out the allergies and sensitivities can be pretty rough and time consuming. The most common symptoms may include; multiple skin reactions, anaphylaxis, multiple digestive complaints (including diarrhea, vomiting, and pain), multiple reactions in the lungs (coughing, sneezing, shortness of breath or wheezing), migraines, irritability, hyperactivity and other personality changes, insomnia, fatigue, depression and anxiety... to start the list. ;) If the challenge of eliminating gluten from the diet seems to be formidable, adding the need for casein removal can make the challenge seem like a herculean task.
There are a few reasons put forward for the similarities in symptoms and the immune reactions in the body between ingestion of gluten and casein. All three have been and are currently under study by researchers.
Casein is one of the most common food allergies and some studies suggest that as much as thirty percent of the general population have elevated amounts of the antibodies in their blood.
Casein has a similar molecular structure to gluten and they both create similar metabolic byproducts from their breakdown and digestion.
The enzyme that is needed to digest dairy is found in the brush borders and the tips of the villi in the small intestine... which is the first area that is damaged in gluten consumption for those individuals who are susceptible. With the necessary enzymes being in low numbers or decimated, the digestive process fails until healing and enzyme re-population has commenced... in some cases, a year after a gluten exposure.
For many parents of children with mental health disorders or developmental delays such as autism, this diet is not seen as a “diet” per se, but as a necessity and way of life. The changes in both behavior as well as mentation have been pretty well documented in self reporting and other unofficial forums. From personal experience, I feel a lot more in 'control' of my mind when I haven't had gluten- celiac aside. These experiences as well as watching and learning from friends and parents who have navigated these particular waters, I have found a great deal of confirmation in my mind that there is a great deal of positive evidence for recommendation of this particular diet for people with specific diagnoses or conditions. So even as I stress that the scientific evidence isn't there yet, I feel like I would be remiss if I hadn’t taken the time to discuss it. Whether the problems are due to the body's confusion of the proteins, lack or appropriate digestive enzymes or even another allergy... the problems are very real and need to be dealt with by individual sufferers on a daily basis.
What are your thoughts? Do you personally have experiences with this diet and individuals who use it? Please share if you are willing to...! :)
The basics of this diet are that the individual not only avoids gluten but also all foods that contain the dairy protein. Some need to do this due to a true allergy and some people report that they have reactions that are similar to gluten intolerance when consuming the dairy protein. This protein can be found in butter, cheese, cream and milk, as well as yogurt and countless other products including chocolate, lunch meat or other prepared meat products and other non-dairy products. Symptoms of a true milk allergy are very similar to gluten intolerance as well as wheat allergy and celiac disease so trying to separate out the allergies and sensitivities can be pretty rough and time consuming. The most common symptoms may include; multiple skin reactions, anaphylaxis, multiple digestive complaints (including diarrhea, vomiting, and pain), multiple reactions in the lungs (coughing, sneezing, shortness of breath or wheezing), migraines, irritability, hyperactivity and other personality changes, insomnia, fatigue, depression and anxiety... to start the list. ;) If the challenge of eliminating gluten from the diet seems to be formidable, adding the need for casein removal can make the challenge seem like a herculean task.
There are a few reasons put forward for the similarities in symptoms and the immune reactions in the body between ingestion of gluten and casein. All three have been and are currently under study by researchers.
Casein is one of the most common food allergies and some studies suggest that as much as thirty percent of the general population have elevated amounts of the antibodies in their blood.
Casein has a similar molecular structure to gluten and they both create similar metabolic byproducts from their breakdown and digestion.
The enzyme that is needed to digest dairy is found in the brush borders and the tips of the villi in the small intestine... which is the first area that is damaged in gluten consumption for those individuals who are susceptible. With the necessary enzymes being in low numbers or decimated, the digestive process fails until healing and enzyme re-population has commenced... in some cases, a year after a gluten exposure.
For many parents of children with mental health disorders or developmental delays such as autism, this diet is not seen as a “diet” per se, but as a necessity and way of life. The changes in both behavior as well as mentation have been pretty well documented in self reporting and other unofficial forums. From personal experience, I feel a lot more in 'control' of my mind when I haven't had gluten- celiac aside. These experiences as well as watching and learning from friends and parents who have navigated these particular waters, I have found a great deal of confirmation in my mind that there is a great deal of positive evidence for recommendation of this particular diet for people with specific diagnoses or conditions. So even as I stress that the scientific evidence isn't there yet, I feel like I would be remiss if I hadn’t taken the time to discuss it. Whether the problems are due to the body's confusion of the proteins, lack or appropriate digestive enzymes or even another allergy... the problems are very real and need to be dealt with by individual sufferers on a daily basis.
What are your thoughts? Do you personally have experiences with this diet and individuals who use it? Please share if you are willing to...! :)
Labels:
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symptoms
2013/11/11
Ethical Concerns for Providers when Dealing with Refugee Populations
There is no doubt that mental health professionals and other service providers can help alleviate the effects of trauma, torture and other crimes that are perpetrated against people and communities due to circumstances, religion, war, etc... Throughout this class, I have learned quite a bit about the consequences to both individuals and groups based on trauma/ torture and have even broadened my views of how those terms should be defined. Between therapies that are individualized or set up for groups (such as a family, community or people with the same traumas and problems in common) and interactions that attempt to alleviate suffering through the use of medical training, pharmaceuticals, neurobiological or cognitive therapies, etc... Many groups and professional have been focused on – and continue to try- to help victims and the society as a whole heal, develop techniques for survival and daily care, as well as trying to improve the quality of health and life of those affected. However, there can be challenges as well as ethical problems that the mental health / medical provider can face in these situations.
One challenge can come in the form of using pharmaceuticals to help the patient deal with some of the symptoms that cause difficulty in their lives. While studies do suggest that medication makes a bigger impact on an individual's symptoms, the issue is not that black and white. How the patient and/or their family feels about medical care in general (or mental health medication specifically) has an effect on how the medication is used and therefore, how successful it can be. An individual's culture may also weigh into the decision to use medical treatments/ medicine of any kind. And how the services are provided might also affect the utilization of those services. Language, economics, and other barriers can cause misunderstandings and challenges as well. A perfect example of this problem can be found in the book, “The Spirit Catches You and You Fall Down” written by Anne Fadiman. An amazing and very sad biography.
Another thing that is very important for the provider to acknowledge and understand is that the trauma itself may be what the provider wishes to treat and focus on... but the provider is still treating a person. An individual with different perceptions, biases, experiences and other ways of seeing and moving through the world. And so while trying to treat the troublesome symptoms of the past trauma, it is imperative that the person being treated isn't seen in the narrow sense as a label or a diagnosis. The patient needs to be viewed and looked at in the 'prism' of their views and life... so recommendations and therapies need to be available to the patient in a way that fits their current set of circumstance and needs. I thought of an experience in my life when I had a few sick animals who lived with me and my family in a one room yurt. The vet said that one cat needed to be fed a special food, another cat needed a different special food and the other cats couldn't eat either food. When I mentioned that I lived in one room, I was told to deal with it. I did figure out a solution that worked, but it took a while and I didn't use the resources that had been offered nor have I been back to that clinic. I probably would have felt differently and used the resources offered if the provider had made them seem possible. Just a thought on that topic.... So making sure that the resources used are more helpful than stressful and really address the 'whole person' are needed. That takes more time and energy as well as an understanding of an an attempt to put your own biases, etc... aside. That is a bit difficult to do for most of us. :) Also making sure that the resources are available to use in a way that works for the client makes them more likely to be utilized and more likely to help the patient with lasting change in their lives... which is the goal!
Another important element – which I touched on in the last paragraph is to make sure that a thorough understand of the person and their culture are attained. By understanding what is important to the individual and what they use to not only make decisions but base most of what is important in their life on.... the suggestions and recommendations that are given by the mental health providers are more likely to not only be followed but misunderstandings are more likely to be caught quickly and early in the process. That helps develop the trust relationship between the provider and the patient as well as help the patient to work harder to help themselves because not only does it matter to them as individuals, the provider has shown that it matter to them too. (Aren't we all more likely to accomplish our goals when we have a friendly goal 'buddy'?) So by having decent understanding of the background and viewpoint of the patient, the service providers can make fewer but more meaningful referrals and help keep the patient on task. An example is not suggesting a patient with PTSD have an occasional drink to relax but maybe a cookie or a walk with a friend instead. If the culture sees nightmares and terrors as a curse from God that must be overcome.... then they are much less likely to take the Ambien to sleep nor will their family encourage them to do so. Telling an individual to eat pork or stop smoking for their health when smoking is part of their religious practices or the eating of pork is against their beliefs will either cause total noncompliance or partial uncompliance as the patient will only do it when they feel pressed to do so or have another compelling reason to do so. It is important that the clinician recognizes what his values are and recognize when he is potentially pushing values and cultural norms on the patient and not actual treatment. I know those examples are not mental health related, but I thought they did help me make the point I was attempting to make. :)
Another thing that it is imperative that mental health providers think about when dealing with challenged and refugee populations is to follow the information and tools that have work in the past as evidenced by studies and their own observations and life experience, but to also recognize that the current work that is being done can give good insights into potential therapies simply because if it appears to be currently working, with so few good studies out there.... if every is in agreement to try something new... that has the potential to help victims now as well as future populations. This kind of flexibility to look outside the box but also to be cautious and thoughtful about trying therapies that haven't had a lot of use and study is a challenging but needed trait in these providers. It is also this flexibility that allows the clinician to look at the individual in a well rounded way, and not just the way that they have been taught to see certain symptoms or mental distress.
Lastly, it is important that the clinician recognize and maintain clear boundaries between themselves and their patients so that both parties can work together for improvement and satisfaction. When the boundaries are loosened, both parties may find it very challenging to continue to work together and to work towards progress in the manner that was possible when the division between the two was clearly laid out. Providing services that also allow the individual to have privacy not only from strangers who do not have a legitimate need to know their information, but also family can also help the patient by making things clearer and less likely to be misunderstood through another person's biases and thoughts mixing into the mix. An example could be when the parties involved have a language barrier – a translator from outside the patients inner circle may make a different translation that a family member or a friend who may interpret what the patient is saying or needs based on what they think the patient needs... not quite the same thing. This kind of translation can also compromise a patient's need and right for confidentiality making services more challenging for them to get and undermining the trust needed between the patient and the provider. The provider must also to make sure to care for and recognize problems that may crop up with themselves from working with this population and take care to not allow themselves to become burned out or harmed in the process of helping others... which can cause them to be unable to continue to help or even to cause more trauma to the patient.
To be a provider to such a challenged population comes with both risks and rewards for the clinician and the patients. Understanding the important ethical concerns that should be addressed can help everyone involved do a better job, be safer, and to help people gain more resiliency and a better quality of life through the therapies. What more can we ask for? :)
One challenge can come in the form of using pharmaceuticals to help the patient deal with some of the symptoms that cause difficulty in their lives. While studies do suggest that medication makes a bigger impact on an individual's symptoms, the issue is not that black and white. How the patient and/or their family feels about medical care in general (or mental health medication specifically) has an effect on how the medication is used and therefore, how successful it can be. An individual's culture may also weigh into the decision to use medical treatments/ medicine of any kind. And how the services are provided might also affect the utilization of those services. Language, economics, and other barriers can cause misunderstandings and challenges as well. A perfect example of this problem can be found in the book, “The Spirit Catches You and You Fall Down” written by Anne Fadiman. An amazing and very sad biography.
Another thing that is very important for the provider to acknowledge and understand is that the trauma itself may be what the provider wishes to treat and focus on... but the provider is still treating a person. An individual with different perceptions, biases, experiences and other ways of seeing and moving through the world. And so while trying to treat the troublesome symptoms of the past trauma, it is imperative that the person being treated isn't seen in the narrow sense as a label or a diagnosis. The patient needs to be viewed and looked at in the 'prism' of their views and life... so recommendations and therapies need to be available to the patient in a way that fits their current set of circumstance and needs. I thought of an experience in my life when I had a few sick animals who lived with me and my family in a one room yurt. The vet said that one cat needed to be fed a special food, another cat needed a different special food and the other cats couldn't eat either food. When I mentioned that I lived in one room, I was told to deal with it. I did figure out a solution that worked, but it took a while and I didn't use the resources that had been offered nor have I been back to that clinic. I probably would have felt differently and used the resources offered if the provider had made them seem possible. Just a thought on that topic.... So making sure that the resources used are more helpful than stressful and really address the 'whole person' are needed. That takes more time and energy as well as an understanding of an an attempt to put your own biases, etc... aside. That is a bit difficult to do for most of us. :) Also making sure that the resources are available to use in a way that works for the client makes them more likely to be utilized and more likely to help the patient with lasting change in their lives... which is the goal!
Another important element – which I touched on in the last paragraph is to make sure that a thorough understand of the person and their culture are attained. By understanding what is important to the individual and what they use to not only make decisions but base most of what is important in their life on.... the suggestions and recommendations that are given by the mental health providers are more likely to not only be followed but misunderstandings are more likely to be caught quickly and early in the process. That helps develop the trust relationship between the provider and the patient as well as help the patient to work harder to help themselves because not only does it matter to them as individuals, the provider has shown that it matter to them too. (Aren't we all more likely to accomplish our goals when we have a friendly goal 'buddy'?) So by having decent understanding of the background and viewpoint of the patient, the service providers can make fewer but more meaningful referrals and help keep the patient on task. An example is not suggesting a patient with PTSD have an occasional drink to relax but maybe a cookie or a walk with a friend instead. If the culture sees nightmares and terrors as a curse from God that must be overcome.... then they are much less likely to take the Ambien to sleep nor will their family encourage them to do so. Telling an individual to eat pork or stop smoking for their health when smoking is part of their religious practices or the eating of pork is against their beliefs will either cause total noncompliance or partial uncompliance as the patient will only do it when they feel pressed to do so or have another compelling reason to do so. It is important that the clinician recognizes what his values are and recognize when he is potentially pushing values and cultural norms on the patient and not actual treatment. I know those examples are not mental health related, but I thought they did help me make the point I was attempting to make. :)
Another thing that it is imperative that mental health providers think about when dealing with challenged and refugee populations is to follow the information and tools that have work in the past as evidenced by studies and their own observations and life experience, but to also recognize that the current work that is being done can give good insights into potential therapies simply because if it appears to be currently working, with so few good studies out there.... if every is in agreement to try something new... that has the potential to help victims now as well as future populations. This kind of flexibility to look outside the box but also to be cautious and thoughtful about trying therapies that haven't had a lot of use and study is a challenging but needed trait in these providers. It is also this flexibility that allows the clinician to look at the individual in a well rounded way, and not just the way that they have been taught to see certain symptoms or mental distress.
Lastly, it is important that the clinician recognize and maintain clear boundaries between themselves and their patients so that both parties can work together for improvement and satisfaction. When the boundaries are loosened, both parties may find it very challenging to continue to work together and to work towards progress in the manner that was possible when the division between the two was clearly laid out. Providing services that also allow the individual to have privacy not only from strangers who do not have a legitimate need to know their information, but also family can also help the patient by making things clearer and less likely to be misunderstood through another person's biases and thoughts mixing into the mix. An example could be when the parties involved have a language barrier – a translator from outside the patients inner circle may make a different translation that a family member or a friend who may interpret what the patient is saying or needs based on what they think the patient needs... not quite the same thing. This kind of translation can also compromise a patient's need and right for confidentiality making services more challenging for them to get and undermining the trust needed between the patient and the provider. The provider must also to make sure to care for and recognize problems that may crop up with themselves from working with this population and take care to not allow themselves to become burned out or harmed in the process of helping others... which can cause them to be unable to continue to help or even to cause more trauma to the patient.
To be a provider to such a challenged population comes with both risks and rewards for the clinician and the patients. Understanding the important ethical concerns that should be addressed can help everyone involved do a better job, be safer, and to help people gain more resiliency and a better quality of life through the therapies. What more can we ask for? :)
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2013/11/01
Rape, Assault, and the Damage to Individuals and our Society
So, over the last few weeks, we have covered the basic ideas of what trauma and torture are, an understanding of how it affects the individual victims by causing PTSD and other medical problems, and how if affects and changes the actions of family members, friends, and caregivers. So it seems only fitting that this week we look at some of the most common trauma in our society as well as how it changes and impacts our society as well. Some of the most common forms of violence and trauma in American society is physical and sexual assault. Some studies show that the United States has the highest rate of homicide than any other first world nation (approximately 8.3 per 100,000 people) with the exception of the Bahamas and Ecuador. (Isn't that pretty interesting that our country holds itself up as a Superpower and the 'police' of the world, but we as a nation cause just as much harm to each other as we do to other countries... maybe even more. Something to think about when looking at American culture and what we like or want to change about it.) While homicide is at the extreme end of the spectrum of violence, physical assault is much more common place and studies show that a considerable percentage of our population have experienced physical assault at least once in their lives. Adolescents and adults are most likely to be assaulted and both African American and Hispanic populations have higher rates of assault/ homicide over other racial groups.
There are a few subtle and clear paths to see the effects of both physical and sexual assault of the individuals in our society... and therefore, the society as a whole. Studies show that people who have either been victims of crime or family members of the former tend to behave and think differently in a few aspects of their life. Some numbers mentioned in the text express this trend:
1. 36% of family members that have experienced criminal homicide become more careful about their personal safety.
2. 74.7% of people who have had experience with alcohol related vehicular death also admit to taking extra precautions to protect themselves from crime.
3. 11.7% of victims choose to begin carrying a gun
Another number mentioned was that 94% of emergency room visits in 1994 where the patient was seen for violence related injuries, the injuries were attained as part of an assault. In general, women tend to fear being a victim of crime more than men and so they restrict many aspects of their lives and their behavior based on that fear... but most members of our society have some fear of being a victim at some point in their lives and that is a tragic statement in and of itself. Victims of assault (whether physical or sexual) are more likely to develop and have problems with chronic health conditions such as pain, gastrointestinal disorders, headaches as well as other complaints. Other concerns are that these individuals receive more medical care overall, have non normal sexual function, and challenges with somatic symptoms that as twice as frequent as the general population.... as well as bulimia and low body weight. They are less likely to see their health in a favorable light, are more likely to engage in unhealthy behaviors such as smoking and substance abuse and see a future ahead of them that is bleak and devoid of good things. In fact, rape and physical assault victims as associated with the highest levels of PTSD among women when compared with other civilian traumas.
One paradox that I see in our society is that as a rule, the victims of crime are seen as a part of the crime and some blame is attached to them. If a women is raped, it is because of her clothing, her choice to have a drink, her choice of friends, whether she 'fought' hard enough, etc.... I think that we tend to perpetuate this ideal because it helps each of us to 'feel' safer- we don't wear those clothes, etc.... but it is also so embedded into our culture as a way of controlling people – mostly women and minorities- that we don’t even realize that we are doing it. One of the pharmacists that I worked with at one point said that a teenager who was killed was entirely to blame for her own death as she made the choice to go see someone she had only known online and she must have been stupid as well. I was horrified by the statement and nothing I could say to her would change her opinion. However, I think that the textbook worded the thoughts that I was feeling best:
“Predatory assailants, not victims, cause assaults, irrespective of any risk factors the victims might possess.”
“...Studies show that all victim's behaviors are of lesser significance than offender characteristics in determining the outcome of sexual assault...”
It feel pretty conflicting to realize not only how common rape and assault are in our communities, county and the world overall, but to also learn how much these acts cause such long term harm not only to the individuals affected but also to our society as a whole was pretty challenging for me. I hear the terms rape culture and see the way people of both genders react when talking about cases of rape or sexual assault. But to see a brief view of the ripples that these acts are causing across the society I live in is staggering. Even if all assaults both sexual and physical ended today and never happened again in America... it would be generations (if ever) before our society recovered because of the damage caused in the past. I wonder how many of my reactions are involuntary based on my past. I wonder how as people modify their actions and behaviors that we model for the future generations, if we can ever really lose those behaviors.
What are your thoughts?
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2013/10/24
The Consequences of Holocaust Trauma on Individuals and Future Generations
When I sat down to this week's readings, I felt like the last several weeks had given me a pretty basic background and preparation for this task. In addition to all the information talked about in this class I also had the benefit (I'm not sure that is the right word) of growing up hearing about the persecution and attempted extermination of the early adherents to my religion so I felt like that gave me an additional potential viewpoint. Yet even with all this preparation and my own past difficulties and trials- as well as a decent understand of how challenging the Holocaust was for those who were victims of the Final Solution (by far mostly Jews, but I believe homosexuals, Jehovah's witnesses and other groups were also targeted), I found myself shocked the depth and length of the trauma's effects even by those who had not experienced the worst horrors of the system... even those who experiences almost none of it, but lived with and loved those who had. A few weeks ago, I made a comment in one of my discussion posts about a young child who I felt was potentially picking up PTSD from helping and living with her afflicted parent. I wrote it because I have been thinking it for a very long time, but I also have kept that thought to myself for the most part because I do not feel I have the qualifications to back up my belief... but I will admit my fear of the parent's reactions is pretty severe. I also wondered if that was generally possible- to get the symptoms and difficulties of a disorder simply by being around someone who has the problem... after all, you can't get AIDS or Alzheimer's with very few exceptions just by spending time with someone. Our readings definitely suggested to me that it is possible and while I may not be right, maybe there are some things that I can look into to maybe not only help, but also to have a greater understanding and sympathy for the suffering of this family.
In general it appears that the effects of surviving Holocaust trauma may be varied due to differences in people, trauma endured, and other life components, it is easily stated that this is a long lasting, multi generational problem that affects a survivor's social, cultural, medical and daily lives... as well as those individuals that live with, love, and entwine their lives with those that have survived. As mentioned in a paper written by Natan Kellermann, until the traumatic events are properly acknowledged and then the steps of the healing process properly followed, the trauma will continue to affect and distort the daily life of the victim and the secondary sufferers. Some symptoms that were mentioned from either direct sources or the family members of those primarily effected by the trauma are as follows: mourning and other emotions such as guilt, anger, anxiety, grief, etc. Also sleep problems including insomnia, nightmares, and other sleep problems and mental challenges dealing with depression, repression of difficult memories or feelings, overactive defense mechanisms causing problems with excessive fear, anxiety, lack of emotive or 'numb' response, etc... (Most of the symptoms of PTSD are present in this population.) Also, behavior that is defensive and not appropriate to the current situation is often found exhibited by victims. Some of these cognitive and behavioral challenges may affect the victim by holding them back from many social activities / events either emotionally or making special events that usually provoke joy to also cause sorrow and anger. These behaviors may vary per person and how the trauma has affected them, but it causes many parts of their daily life and activities to be challenged in a way that other unaffected individuals do not have to deal with. Other long term problems that sufferers may find are easier susceptibility to numerous other mental difficulties as well as stress related medical disorders.
A difficult and challenging problem to deal with... especially as we have had a few massacres performed on other groups since. I was listening to a commentary on a new music CD that was released by a group called 'Split Enz' (I think) a little bit ago and some of the songs on this album as well as past albums discuss the pain of the lead writer who is dealing with genocide of past relatives and his life of having to move and sometimes live a confusing existence as a refugee. One song was a poem by his mother who at the age of five lost many family members to genocide and he mixes his and her thoughts and feelings together in one song. As I was reading this week I thought about that interview and the struggles of people generations after the event as I hadn't really thought that much about it before.
A very difficult topic to be sure... what are your thoughts on this issue? Do you have any personal experience that you are willing to share? What do you think that we can do as a society to not only help victims of all crimes, but also try to help the families, caregivers and friends of those who have these challenges? Please share....
In general it appears that the effects of surviving Holocaust trauma may be varied due to differences in people, trauma endured, and other life components, it is easily stated that this is a long lasting, multi generational problem that affects a survivor's social, cultural, medical and daily lives... as well as those individuals that live with, love, and entwine their lives with those that have survived. As mentioned in a paper written by Natan Kellermann, until the traumatic events are properly acknowledged and then the steps of the healing process properly followed, the trauma will continue to affect and distort the daily life of the victim and the secondary sufferers. Some symptoms that were mentioned from either direct sources or the family members of those primarily effected by the trauma are as follows: mourning and other emotions such as guilt, anger, anxiety, grief, etc. Also sleep problems including insomnia, nightmares, and other sleep problems and mental challenges dealing with depression, repression of difficult memories or feelings, overactive defense mechanisms causing problems with excessive fear, anxiety, lack of emotive or 'numb' response, etc... (Most of the symptoms of PTSD are present in this population.) Also, behavior that is defensive and not appropriate to the current situation is often found exhibited by victims. Some of these cognitive and behavioral challenges may affect the victim by holding them back from many social activities / events either emotionally or making special events that usually provoke joy to also cause sorrow and anger. These behaviors may vary per person and how the trauma has affected them, but it causes many parts of their daily life and activities to be challenged in a way that other unaffected individuals do not have to deal with. Other long term problems that sufferers may find are easier susceptibility to numerous other mental difficulties as well as stress related medical disorders.
A difficult and challenging problem to deal with... especially as we have had a few massacres performed on other groups since. I was listening to a commentary on a new music CD that was released by a group called 'Split Enz' (I think) a little bit ago and some of the songs on this album as well as past albums discuss the pain of the lead writer who is dealing with genocide of past relatives and his life of having to move and sometimes live a confusing existence as a refugee. One song was a poem by his mother who at the age of five lost many family members to genocide and he mixes his and her thoughts and feelings together in one song. As I was reading this week I thought about that interview and the struggles of people generations after the event as I hadn't really thought that much about it before.
A very difficult topic to be sure... what are your thoughts on this issue? Do you have any personal experience that you are willing to share? What do you think that we can do as a society to not only help victims of all crimes, but also try to help the families, caregivers and friends of those who have these challenges? Please share....
2013/10/21
PTSD : The struggle between Homeostasis and Protection
Have I mentioned how much taking the class on “Genocide and Torture” this semester has really been such a blessing? I have known so little about PTSD and other symptoms and consequences of horrific human behavior and I feel like I have learned so much not only about other people, but also about how my body and my brain reacts to things which I have never understood before- at least not very well. I spent some time this week looking at how two specific systems in our body are used to help the body in times of threat and how it returns to its 'normal' state of being. And while doing these readings, it was really interesting to find out how PTSD actually changes the way that these systems function and causes some of the symptoms that cause sufferers of this disorder so many problems.
So the first group we looked at was a part of the nervous system called the sympathetic nervous system. It is actually one of the divisions in the autonomic nervous system. From my past medical days, I would remember what it used to do by reminding myself that the autonomic system controls almost all of our involuntary functions such as cardiac muscle, all smooth muscle in the body and also some of the glands. The sympathetic system is easily remembered (to me anyway) because it is the 'action committee' or it could also be seen as the person who feels sorrow for the hurts of a friend and leaps into action to try and help. “Fight or Flight” is the name of its mission statement per se and so when the body (or the mind) needs or believes it has encountered a threat to the body, the 'committee' leaps into action. Our heart rate gets faster (usually our breathing does too), our body shuts down its 'temporarily' unnecessary organs from normal blood flow to improve circulation to the heart, lungs, brain and muscles and the body also starts to release its reserves of stored energy so that the body has extra strength and zip when needed. There are two key neurotransmitters that are released into the body which help create this response; they are epinephrine and nor-epinephrine. The sympathetic nervous system plays a key role in how individuals can recognize a threat, feel fear and how each person will react and remember responses to future stimulus that I considered threatening.
Another response mechanism that the physical body has is called the Hypothalamic- Pituitary- Adrenal Axis. One of the most amazing things about our bodies is that all physical beings have a need to homeostasis- or keeping everything at a normal level. So when the body reacts to something, the body also has ways to attempt to bring the body back to its normal way of being. These hormones try to restore the body to a proper natural state after the person has experienced stress, fear, etc... So when a person has been under the influence of a 'stressor', the hypothalamus releases a hormone that goes to work on the pituitary gland to release another hormone. That hormone works of the adrenal glands to stimulate another hormone that helps to calm the body and 'turn off' the signals of the high 'stress' hormones and neuro transmitters.
In the average individual, these systems work together really well to help a person deal with a significant threat (or perceived threat) in good ways and then brings the body back to a normal level of function. In someone with PTSD, however, these systems do not always work the way that they were intended. So, the sympathetic system can be turned on over sounds or events that are not currently happening, memories etc... and the body will response as if the threat is clear and present. Other studies had shown that some people with PTSD have challenges with incorporating or being sensitive enough to the hormones that turn the stress response off. So people with these challenges are more likely to be overly stressed often and have more challenges in getting the body calmed down and focused again for their regular tasks and needs. That seems like an extra challenge to be sure!
So, take a few minutes and think.... How does your body react to stress and how well does it call down? If you have PTSD, how do you think your body reacts differently than someone else that does not? What techniques do you use to try and help your body reach a level of calm faster?
2013/10/05
PTSD / Post Traumatic Stress Syndrome - The Basics and the Personal
This week I took an in-depth look at post-traumatic stress syndrome... otherwise known as PTSD. My experience with PTSD is both personal and community orientated. Some of my family knows that I have this diagnosis, but for those that do not... I am coming out of the closet ;) I was diagnosed with PTSD three years ago stemming from experiences that occurred before I was eighteen in my parent's household. (I am not trying to be mean about my parents … I frankly think at this point that they did the best they knew how and complaining or blaming doesn't change anything.) I have some friends who also suffer from this disorder and some acquaintances who struggle with it so badly that they really find it difficult to get through the day... every day. One challenge that people with this disorder face every day is that this problem isn't normally visible to the world around them. Unlike someone who is in a wheelchair or has a different physical problem, the world around you doesn't know for the most part that you need certain care, what that care is, etc... So when a situation changes and puts the individual into instinctual action, everyone surrounding you for the most part is unprepared to deal with it and the individual themselves just struggles to hold themselves together and pull their mind and feelings back to the present.
So for those individuals that do not know much about post traumatic stress disorder, let me share some of the basics. PTSD is usually caused by events that happen to a person (or persons) that are out of the ordinary and which someone's 'life or integrity' is at risk, affected, etc... The action can happen to the person or someone can develop this disorder from witnessing something severely challenging. When described in those words it seems (at least to me) like something simple and most simple things are easy to fix. From my own personal experience as well as the experiences that have been shared with me by friends or family, it is not simple at all. Another thing that I have noticed in my experiences is that PTSD is different and is responded to differently by anyone who has it and when I asked about that idea at a conference last year I was told that happens because people's personalities and how they handle and react to things initially are different and also their experiences and how they feel about them are different. Some healthcare professionals also believe that PTSD is more likely to affect 'vulnerable people' such as those with fewer defense mechanisms, fewer safe resources in family and friends, people with low self esteem, etc.... and others believe that getting the disorder could cause the self esteem, defense problems, etc... (Reminds me a little bit of the age old question of which came first... the chicken or the egg.) While most people have heard of PTSD being a consequence for soldiers who have experienced military combat, it is also common for victims of abuse, rape, torture and more. If there is one part of the definition that seems a bit challenging to define, it's 'out of the ordinary world experience'...? Wouldn't that also depend on the individual involved and what was normal for them? A good reason that even defining what causes the disorder can be difficult!
Even though the exact description of the problem isn't precise, the symptoms of PTSD are very easily defined. There are three categories that symptoms can easily be placed in; re-experience, avoidance, and arousal. Here is a basic breakdown of what those categories cover.
1. Re-experience - These symptoms include flashbacks and /or reliving the traumatic event for minutes or much longer. Some people get difficult dreams about the traumatic event(s)
2. Avoidance - Some symptoms include the attempt to try to avoid thinking or talking about the traumatic event, avoiding activities or people that you used to enjoy, feeling hopeless and anxiety about the future, difficulty with memory as well as emotional challenges (such as feeling numb or unable to feel much), and difficulty concentrating as well as maintain close, personal relationships.
3. Arousal - Some symptoms people may feel are increased anxiety, irritability / anger, trouble sleeping, being easily startled, frightened (jumpy), large quantities of guilt or shame, self destructive behavior in an attempt at self medicating or suppressing the problem, and even other mental disorders that can be caused by the heightened emotional and mental challenges
One thing that I spent a lot of time thinking about was the difference between remembering the experience and reliving it. At first, I didn't see much of a difference, but the more I thought about it ... I realized there is a very big difference! One thing that came to mind, I thought about a few people I know and how this disorder affects the way they do things. I thought of a friend who tends to make chaos in every situation she is in and it gives her something to feel good about and also sets her up as a victim if people get angry at her. She also misinterprets facial expressions and if some one gives her a quizzical look, she is enraged and will shun or try to hurt that person for weeks in her anger... yet also separates herself from anyone but family as well at that time. She never sleeps well and has migraines approximately twelve days of the month. One reason I was interested in this subject was that I want to understand how to help people dealing with trauma better than I do so that maybe I can be of help to others as they struggle. Maybe I can learn how to understand myself better and not have so much fear behind the 'smile'. My friend also fears the future and her children are their mother's PTSD? Not sure and that is just speculation on my part. I really wish there was something I could do for her, but I really can't figure anything out.
There are many treatments out there for this condition, but as people are different they are not always as successful as they could be. Doctors used medications as well as counseling and other therapies to try and help patients. I use medication and prayer as well as an anti-depressant and try to avoid situations which can cause me more challenges and panic. For the most part, that really helps me to do the things I need to and want to do comfortably and not have problems... which is a wonderful thing! I know that some brain problems an be helped by therapy to 'change' the wiring of the brain such as in sensory integration disorder (SID), sensory processing disorder (SPD), etc... I wonder if PTSD is more challenging than some disorders such as the ones I just mentioned because PTSD is something that was forced 'onto' the body and not an original part of it......
I would love to hear some of your thoughts... Do any of you have experience in helping people (or yourself) with this problem? What has been successful and helpful for you? If any of my readers feel comfortable sharing, please feel free to continue the conversation and we can learn together. :)
So for those individuals that do not know much about post traumatic stress disorder, let me share some of the basics. PTSD is usually caused by events that happen to a person (or persons) that are out of the ordinary and which someone's 'life or integrity' is at risk, affected, etc... The action can happen to the person or someone can develop this disorder from witnessing something severely challenging. When described in those words it seems (at least to me) like something simple and most simple things are easy to fix. From my own personal experience as well as the experiences that have been shared with me by friends or family, it is not simple at all. Another thing that I have noticed in my experiences is that PTSD is different and is responded to differently by anyone who has it and when I asked about that idea at a conference last year I was told that happens because people's personalities and how they handle and react to things initially are different and also their experiences and how they feel about them are different. Some healthcare professionals also believe that PTSD is more likely to affect 'vulnerable people' such as those with fewer defense mechanisms, fewer safe resources in family and friends, people with low self esteem, etc.... and others believe that getting the disorder could cause the self esteem, defense problems, etc... (Reminds me a little bit of the age old question of which came first... the chicken or the egg.) While most people have heard of PTSD being a consequence for soldiers who have experienced military combat, it is also common for victims of abuse, rape, torture and more. If there is one part of the definition that seems a bit challenging to define, it's 'out of the ordinary world experience'...? Wouldn't that also depend on the individual involved and what was normal for them? A good reason that even defining what causes the disorder can be difficult!
Even though the exact description of the problem isn't precise, the symptoms of PTSD are very easily defined. There are three categories that symptoms can easily be placed in; re-experience, avoidance, and arousal. Here is a basic breakdown of what those categories cover.
1. Re-experience - These symptoms include flashbacks and /or reliving the traumatic event for minutes or much longer. Some people get difficult dreams about the traumatic event(s)
2. Avoidance - Some symptoms include the attempt to try to avoid thinking or talking about the traumatic event, avoiding activities or people that you used to enjoy, feeling hopeless and anxiety about the future, difficulty with memory as well as emotional challenges (such as feeling numb or unable to feel much), and difficulty concentrating as well as maintain close, personal relationships.
3. Arousal - Some symptoms people may feel are increased anxiety, irritability / anger, trouble sleeping, being easily startled, frightened (jumpy), large quantities of guilt or shame, self destructive behavior in an attempt at self medicating or suppressing the problem, and even other mental disorders that can be caused by the heightened emotional and mental challenges
One thing that I spent a lot of time thinking about was the difference between remembering the experience and reliving it. At first, I didn't see much of a difference, but the more I thought about it ... I realized there is a very big difference! One thing that came to mind, I thought about a few people I know and how this disorder affects the way they do things. I thought of a friend who tends to make chaos in every situation she is in and it gives her something to feel good about and also sets her up as a victim if people get angry at her. She also misinterprets facial expressions and if some one gives her a quizzical look, she is enraged and will shun or try to hurt that person for weeks in her anger... yet also separates herself from anyone but family as well at that time. She never sleeps well and has migraines approximately twelve days of the month. One reason I was interested in this subject was that I want to understand how to help people dealing with trauma better than I do so that maybe I can be of help to others as they struggle. Maybe I can learn how to understand myself better and not have so much fear behind the 'smile'. My friend also fears the future and her children are their mother's PTSD? Not sure and that is just speculation on my part. I really wish there was something I could do for her, but I really can't figure anything out.
There are many treatments out there for this condition, but as people are different they are not always as successful as they could be. Doctors used medications as well as counseling and other therapies to try and help patients. I use medication and prayer as well as an anti-depressant and try to avoid situations which can cause me more challenges and panic. For the most part, that really helps me to do the things I need to and want to do comfortably and not have problems... which is a wonderful thing! I know that some brain problems an be helped by therapy to 'change' the wiring of the brain such as in sensory integration disorder (SID), sensory processing disorder (SPD), etc... I wonder if PTSD is more challenging than some disorders such as the ones I just mentioned because PTSD is something that was forced 'onto' the body and not an original part of it......
I would love to hear some of your thoughts... Do any of you have experience in helping people (or yourself) with this problem? What has been successful and helpful for you? If any of my readers feel comfortable sharing, please feel free to continue the conversation and we can learn together. :)
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2011/09/08
Introspection on my Past, Abilities, and Recent Thoughts: part 2
Here are the last paragraphs of the last posting....
My current view of life is a journey, but very open ended. I am not sure where I am headed nor do I know for sure where I want to go. All of my goals right now in many ways are short term. Get a good job…. finish school…. try to fix my home situation….. try to survive… stay healthy… - nothing for the most part that is entirely long term and cannot be changed. And all the goals are sort of vague as to what things I need to accomplish them I need to do. I am trying really hard right now to learn about myself and to try and understand how I am different and become a better communicator and person, but I do feel constrained and frankly I am split in some ways I see life as a great learning experience, but I see most learning as painful, difficult and I am not always sure that it is worth the struggle. I tend to also see most positive experiences as something that I cannot easily attain for many reasons whether it is my insecurity in my ability or my lack of physical assets, etc…
In my lifetime I have had a few leadership experiences. I have been a director of a play for grade school children, a mother, a medical supervisor for a drug abuse/crisis center for teens, and an advisor for a church youth program that due to circumstances gave me no authority but all the responsibility. As a director, I found that I didn’t understand the craft and I didn’t have a stable enough life at the time or the confidence to accomplish it and I gave the job to someone else. I have failed as a mother. As a medical supervisor, I found that the people I supervised didn’t like to do the extra work and nothing I said could convince them to do so- I ended up redoing and doing most of the work myself until I gave up and found a different job elsewhere. As an advisor, I did step up to do the work and sacrificed almost everything. After I had given everything I had for several months, I was ‘fired’ (which I didn’t know was possible from a church job), not given the basic decency that other members would have been given for my work and I have not accepted a job since. I really put all of my time, passion, much of my extra monetary resources and joy into that job and I felt beaten and slapped and unappreciated after my firing. I haven’t been willing to risk that again since. (And I can’t imagine why anyone would want to read any of this- what depressing piteous drivel.)
I think what I need most are some really positive experiences with people that I genuinely believe want to help me improve and have no other motives that that. I need experiences where I am gently pushed forward, encouraged and helped as I struggle. I need to find a way with being OK with who I am and wanting improvements for me and because they are good for me… and not for someone else. I think I also need to reach an understanding that I appear to be a leader… whether I want to be or not, so I should try to be the best. :)
I think what I need most are some really positive experiences with people that I genuinely believe want to help me improve and have no other motives that that. I need experiences where I am gently pushed forward, encouraged and helped as I struggle. I need to find a way with being OK with who I am and wanting improvements for me and because they are good for me… and not for someone else. I think I also need to reach an understanding that I appear to be a leader… whether I want to be or not, so I should try to be the best. :/
As for the idea of entering a new phase in my life, I am totally unsure that is actually true. I feel like I am in a holding pattern and attempting to find a life in this holding pattern and struggling to find the right ideas and words to move in a positive direction from it. I am not sure if I am astute enough to recognize when I am in a new phase until the new phase is ‘over’ and I am in the reality that has continued…? I have no idea if that made any sense or not. I think that the term ‘new phase’ assumes that when change is happening a person is introspective enough to deal with it and to make decisions that are based on what could happen. When I have had change such as the ‘firing’ I mentioned above, I did nothing new but lick my wounds and not accept another job. I didn’t see it as an opportunity that I do see it could have been now. So I think that figuring out you are in a ‘new phase’ may be easier for some people than others or maybe my reaction to all new phases in my life is to curl up, close ranks, and try to deal with my emotional aftermath from it. So if I look at this time in my life as a potential new phase simply because I am still alive and still here ready to work, I think some of the goals I would make wouldn’t change from the ones that I am currently attempting to complete. I would try to survive and learn more about myself, try to stay healthy and work on my family, try to develop better skills and finish my degree. I think that is a pretty tall order already. :)
There are several adjustments that I think I might need to make. However, none of the adjustments seem easily feasible or even possible for me in my current situation. I need to learn how to change thinking patterns and I think doing that on my own is not only slow but I have no way to truly understand if I am doing it or to measure progress. Sometimes I am not even sure where to start- after all you can’t start on everything that is wrong all at once. And, in all honesty I am quite a biased party. How can I figure out what is most important if I have difficulty looking at me separately from being me? I need to find a way to feel more confident and improve my self-esteem- how do you break through the patterns of thirty-six years if cannot really understand what is a pattern… what patterns are good and acceptable, what patterns are not… and in what areas I turn positive experiences into negative ones? Where does the pattern start positively and since I can’t see it or understand it… I change it? Have I even now seen any real part of any patterns or am I like the electron that sifts so far away from the nucleus that the patterns I see have no relationship to the whole…? I have no idea how to even define adjustments at all and that is fairly scary as well. Even in area where I feel like I have made great inroads to success like financial stability, I feel easily dismissed and I easily decide that I haven’t accomplished anything worthwhile at all. It takes a few days to remind myself that what I think counts, and working towards something that is important to me matters whether others believe it or not. (And a few days I think is pretty good even though I think that I have to remind myself for weeks or the positive traction is gone.) I need to continue to focus on the positive and I need to continue to work on showing caring and forgiveness to myself. I need to maybe adjust my defense mechanisms to allow other people in… although I have no idea how to begin that process on any kind of large scale.
Some ways I can try and change these experiences to something positive...? I can take my past experiences and try to re-frame them. Instead of allowing myself to remember them with the negative emotions and the ‘selfishness’ of my own view and what I felt at the time, I can try and stand back and look at how the other parties not only reacted but what might have caused their reactions. What were they thinking? How to they respond to life in general? I can certainly see that in some ways I am very much my mother’s daughter…. I am more likely to back off than attack and I am more likely to stay away than fight and lash, but I still feel all of those things. While I may not have a mental health disorder that causes me to react and ruminate and lash out at others the way my mother does, in many ways I still think the ways that she does so I simple have different reactions… maybe? Maybe I think I do and I don’t…? Maybe I just want to think I am different and I am simply a carbon copy of the original but I don’t have the excuse of mental illness to justify my behavior. Maybe I am just so hard on myself I am unable to take my experiences and change them to anything positive because I am not sure what really constitutes positive. I know I don’t think I can do this on my own and in many ways I am married with children, pets and friends… and I am still alone. Except for possibly trying to reframe them and try to look at them more positively, I am not sure how I can learn from any of my past. I feel like I need to find a way to simply shed it and the baggage if gives me like a skin from a lizard or I can’t overcome it. I am also aware that isn't really possible... so I will try to keep thinking I guess.
My current view of life is a journey, but very open ended. I am not sure where I am headed nor do I know for sure where I want to go. All of my goals right now in many ways are short term. Get a good job…. finish school…. try to fix my home situation….. try to survive… stay healthy… - nothing for the most part that is entirely long term and cannot be changed. And all the goals are sort of vague as to what things I need to accomplish them I need to do. I am trying really hard right now to learn about myself and to try and understand how I am different and become a better communicator and person, but I do feel constrained and frankly I am split in some ways I see life as a great learning experience, but I see most learning as painful, difficult and I am not always sure that it is worth the struggle. I tend to also see most positive experiences as something that I cannot easily attain for many reasons whether it is my insecurity in my ability or my lack of physical assets, etc…
In my lifetime I have had a few leadership experiences. I have been a director of a play for grade school children, a mother, a medical supervisor for a drug abuse/crisis center for teens, and an advisor for a church youth program that due to circumstances gave me no authority but all the responsibility. As a director, I found that I didn’t understand the craft and I didn’t have a stable enough life at the time or the confidence to accomplish it and I gave the job to someone else. I have failed as a mother. As a medical supervisor, I found that the people I supervised didn’t like to do the extra work and nothing I said could convince them to do so- I ended up redoing and doing most of the work myself until I gave up and found a different job elsewhere. As an advisor, I did step up to do the work and sacrificed almost everything. After I had given everything I had for several months, I was ‘fired’ (which I didn’t know was possible from a church job), not given the basic decency that other members would have been given for my work and I have not accepted a job since. I really put all of my time, passion, much of my extra monetary resources and joy into that job and I felt beaten and slapped and unappreciated after my firing. I haven’t been willing to risk that again since. (And I can’t imagine why anyone would want to read any of this- what depressing piteous drivel.)
I think what I need most are some really positive experiences with people that I genuinely believe want to help me improve and have no other motives that that. I need experiences where I am gently pushed forward, encouraged and helped as I struggle. I need to find a way with being OK with who I am and wanting improvements for me and because they are good for me… and not for someone else. I think I also need to reach an understanding that I appear to be a leader… whether I want to be or not, so I should try to be the best. :)
I think what I need most are some really positive experiences with people that I genuinely believe want to help me improve and have no other motives that that. I need experiences where I am gently pushed forward, encouraged and helped as I struggle. I need to find a way with being OK with who I am and wanting improvements for me and because they are good for me… and not for someone else. I think I also need to reach an understanding that I appear to be a leader… whether I want to be or not, so I should try to be the best. :/
As for the idea of entering a new phase in my life, I am totally unsure that is actually true. I feel like I am in a holding pattern and attempting to find a life in this holding pattern and struggling to find the right ideas and words to move in a positive direction from it. I am not sure if I am astute enough to recognize when I am in a new phase until the new phase is ‘over’ and I am in the reality that has continued…? I have no idea if that made any sense or not. I think that the term ‘new phase’ assumes that when change is happening a person is introspective enough to deal with it and to make decisions that are based on what could happen. When I have had change such as the ‘firing’ I mentioned above, I did nothing new but lick my wounds and not accept another job. I didn’t see it as an opportunity that I do see it could have been now. So I think that figuring out you are in a ‘new phase’ may be easier for some people than others or maybe my reaction to all new phases in my life is to curl up, close ranks, and try to deal with my emotional aftermath from it. So if I look at this time in my life as a potential new phase simply because I am still alive and still here ready to work, I think some of the goals I would make wouldn’t change from the ones that I am currently attempting to complete. I would try to survive and learn more about myself, try to stay healthy and work on my family, try to develop better skills and finish my degree. I think that is a pretty tall order already. :)
There are several adjustments that I think I might need to make. However, none of the adjustments seem easily feasible or even possible for me in my current situation. I need to learn how to change thinking patterns and I think doing that on my own is not only slow but I have no way to truly understand if I am doing it or to measure progress. Sometimes I am not even sure where to start- after all you can’t start on everything that is wrong all at once. And, in all honesty I am quite a biased party. How can I figure out what is most important if I have difficulty looking at me separately from being me? I need to find a way to feel more confident and improve my self-esteem- how do you break through the patterns of thirty-six years if cannot really understand what is a pattern… what patterns are good and acceptable, what patterns are not… and in what areas I turn positive experiences into negative ones? Where does the pattern start positively and since I can’t see it or understand it… I change it? Have I even now seen any real part of any patterns or am I like the electron that sifts so far away from the nucleus that the patterns I see have no relationship to the whole…? I have no idea how to even define adjustments at all and that is fairly scary as well. Even in area where I feel like I have made great inroads to success like financial stability, I feel easily dismissed and I easily decide that I haven’t accomplished anything worthwhile at all. It takes a few days to remind myself that what I think counts, and working towards something that is important to me matters whether others believe it or not. (And a few days I think is pretty good even though I think that I have to remind myself for weeks or the positive traction is gone.) I need to continue to focus on the positive and I need to continue to work on showing caring and forgiveness to myself. I need to maybe adjust my defense mechanisms to allow other people in… although I have no idea how to begin that process on any kind of large scale.
Some ways I can try and change these experiences to something positive...? I can take my past experiences and try to re-frame them. Instead of allowing myself to remember them with the negative emotions and the ‘selfishness’ of my own view and what I felt at the time, I can try and stand back and look at how the other parties not only reacted but what might have caused their reactions. What were they thinking? How to they respond to life in general? I can certainly see that in some ways I am very much my mother’s daughter…. I am more likely to back off than attack and I am more likely to stay away than fight and lash, but I still feel all of those things. While I may not have a mental health disorder that causes me to react and ruminate and lash out at others the way my mother does, in many ways I still think the ways that she does so I simple have different reactions… maybe? Maybe I think I do and I don’t…? Maybe I just want to think I am different and I am simply a carbon copy of the original but I don’t have the excuse of mental illness to justify my behavior. Maybe I am just so hard on myself I am unable to take my experiences and change them to anything positive because I am not sure what really constitutes positive. I know I don’t think I can do this on my own and in many ways I am married with children, pets and friends… and I am still alone. Except for possibly trying to reframe them and try to look at them more positively, I am not sure how I can learn from any of my past. I feel like I need to find a way to simply shed it and the baggage if gives me like a skin from a lizard or I can’t overcome it. I am also aware that isn't really possible... so I will try to keep thinking I guess.
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Instrospection on my Past, Abilities, and Recent Thoughts: part 1
This post is a bit of a hodgepodge and will be in broken into two parts due to length. It has thoughts and introspection on myself, my past experiences, influences, and how I think I have seen the world for many years and that I am trying to change. In some ways this is a very esoteric post and asks more questions than it truly answers about me and what I think. I am not even really sure what I learned about myself through this exercise except a little more self- loathing and a determination to keep trying to affect change in my life because I do want something better and I don't want to hurt as much as I do and I do want to trust and have people in my life. So here are some thoughts... and God help the thinker.!
I have mentioned before that I do not feel like I have had good leadership experiences. This of course leaves a fairly empty field to draw positive experiences from when looking at my past. If I look at the parts of different experiences that I feel good about I find that I have a few more options to look at. If I look at passion, I really like to give of my time and possessions in service to other people. I think that I have a hard time with boundaries so that I sometimes do not know when I should stop giving, how to say no, and to also curb my impulsive nature to just give even when I don’t have it to give. (I think I am in some ways trying to buy the attentions and goodwill and friendship of other people. I am not really sure how successful that has been in my life.) I feel passionate about helping people improve, in trying to understand people and their behavior and motivations and I feel passionate about being successful and helping others find that success too. However, I am not sure I have the skills or understanding to be helpful in many areas and I am not sure that I have had a lot of positive inspiration that has actually caused change in my life. I am not trying to avoid the idea I don’t think. I just have really struggled to find positive change from inspiration from my life in my thoughts and memories and I can’t seem to find any yet. I don’t know if that is my memory, my perspective, or my current trials that tend to block out a lot right now.
When I look at the early patterns of my life story and the people in it, it seems fairly clear that a large part of my childhood was quite negative or my early experiences were such that as time went on, my learned biases and perception of the people and actions around me became negative because my early experiences were. The entire early story that I remember is struggle, fear, the feeling of needs not being met – and I think it is fair to say no self-esteem or confidence in myself. (Certainly over the last year I have come to describe it as self-loathing and failure.) The patterns seem to show a want or a need, a lack of fulfillment for many reasons, frustration and hurt which then manifest as anger and a form of push back whether through action or withdrawal. I have also noticed a strange trust pattern- I will not share with people I do not trust, I trust very easily, if trust is broken the relationship is broken and I walk away from it. That doesn’t make a great deal of sense to me. If I am going to look at people from my early life, I would say that my interactions with my parents were not positive and so they were not positive influences to me and my choices. Ashley Kendrick was my first real friend, and the loss of her due to moving away when I was twelve is a loss that I still feel. She feels like the only positive force in my life in the earlier years. While my siblings helped form memories and action through experience, most of those interactions were negative as well. My mother (whether intentionally or not) would ‘pit’ us against each other and so no positive strong relationship could possibly have been built- at least not by me. I also think that one of the most positive (and negative) things that did happen to me as a child until about the age of fourteen to sixteen was a very strong fantasy life. I think that my creativity and my ‘alter ego’ so to speak helped me to struggle through and sometimes laugh in a life that at sometimes I couldn’t imagine living for or in much longer. In many ways, when I was eighteen I tried to live a life reborn, but found it difficult with the baggage I have carried with me for so many years… and still carry so much of.
I have been dissatisfied with myself in a leadership role in every instance I can think of in my life. Thinking of constructive criticism and experiences with it are nearly impossible for me and I realize that is because all criticism to me is personal. I am not sure there is a way- at least not until recently- to give me criticism in a way that I could truly comprehend it and understand it as a critique on action or thought… and not me as a person. I am not at all convinced that is entirely my fault, but I am unwilling to relinquish responsibility for my biases and prejudices and blame my lack of understanding on anyone else. I also wonder if people were able to feel the anger and hurt underneath and didn’t feel that they had a way to give me constructive feedback. I can remember sometime when I did received feedback (not in a leadership role) and I think that my reaction to it was probably not typical. I remember once getting to go on a church trip without my parents and I was criticized on two things. Once I was told that I should buy as much food with my food card or I would be out by the end of the week. I clearly remember not listening and being a little sad at the end of the week and hungry, but feeling full for a few days and eating what I wanted felt so wonderful that I couldn’t see the criticism as valid… and in some ways I still don’t. That feeling of satisfaction for a few days was truly wonderful and I think of it sometimes when I volunteer at my local food pantry… I wonder if that is one reason I like to volunteer at the local food pantry…? Another time was actually on the same trip (clearly that was a big event in my life! :) and someone whose name is lost to me would correct me every time I ate a bit of food. I guess my teeth would touch my utensil and make a sound. So she would lay her hand on my arm and remind me every time I took a bite of food. My reaction was to not only find no enjoyment in the meal but to stop eating so that I wouldn’t be looked at and I still sometimes attempt to not eat in front of people because I am worried that I don’t look nice while eating and I have poor manners. I think I am still quite a loud eater when I think of it. So I am not sure that if I did get constructive criticism, I would recognize it and be able to recognize what my response to it should be.
I think I have felt that way (the victim) often in my life, but I haven’t called it that or thought of it in that way. I don’t like to feel like a victim; I want to be me and to feel happy and satisfied and successful. I think that sometimes I really don’t understand how not to sometimes. I have been told that I communicate differently than other people and I misunderstand things a lot so I feel very insecure stepping into a strong role. I worry that I will cause difficulty to others or even harm that I didn’t intend to make. I worry that my being me is a problem and maybe it would just be easier to stand back and do what I understand others to tell me to do. That seems so much safer. That way I can get along safely and not be a victim and can find some peace and can give of the talents I think that I have but not hurt other people.
When thinking about whether my earlier experiences constrain or hold me back, the answer is fairly simple. My earlier experiences do constrain me. I may look free and not like I am controlled, but in so many ways I am as confined as someone who has her hands and feet tied and locking in a dark room. If I allow myself to impulsively act, I tend to feel regret or feel that I am told that I am wrong. I do not feel a lot of trust, I am limited by my mind, my allergies and my fear, and so ever circumstance is one that can be used to show me why I am wrong, not a good person, and being part of a team and doing a good job as part of a team is a way to feel successful without a lot of attention on myself. Over the last year I have been trying to understand how to re-frame some of my experiences, but so many of them have so much emotion attached to them and my life feels sort of emotionally unstable right now that I am unsure how to even go about doing that any more.
I have mentioned before that I do not feel like I have had good leadership experiences. This of course leaves a fairly empty field to draw positive experiences from when looking at my past. If I look at the parts of different experiences that I feel good about I find that I have a few more options to look at. If I look at passion, I really like to give of my time and possessions in service to other people. I think that I have a hard time with boundaries so that I sometimes do not know when I should stop giving, how to say no, and to also curb my impulsive nature to just give even when I don’t have it to give. (I think I am in some ways trying to buy the attentions and goodwill and friendship of other people. I am not really sure how successful that has been in my life.) I feel passionate about helping people improve, in trying to understand people and their behavior and motivations and I feel passionate about being successful and helping others find that success too. However, I am not sure I have the skills or understanding to be helpful in many areas and I am not sure that I have had a lot of positive inspiration that has actually caused change in my life. I am not trying to avoid the idea I don’t think. I just have really struggled to find positive change from inspiration from my life in my thoughts and memories and I can’t seem to find any yet. I don’t know if that is my memory, my perspective, or my current trials that tend to block out a lot right now.
When I look at the early patterns of my life story and the people in it, it seems fairly clear that a large part of my childhood was quite negative or my early experiences were such that as time went on, my learned biases and perception of the people and actions around me became negative because my early experiences were. The entire early story that I remember is struggle, fear, the feeling of needs not being met – and I think it is fair to say no self-esteem or confidence in myself. (Certainly over the last year I have come to describe it as self-loathing and failure.) The patterns seem to show a want or a need, a lack of fulfillment for many reasons, frustration and hurt which then manifest as anger and a form of push back whether through action or withdrawal. I have also noticed a strange trust pattern- I will not share with people I do not trust, I trust very easily, if trust is broken the relationship is broken and I walk away from it. That doesn’t make a great deal of sense to me. If I am going to look at people from my early life, I would say that my interactions with my parents were not positive and so they were not positive influences to me and my choices. Ashley Kendrick was my first real friend, and the loss of her due to moving away when I was twelve is a loss that I still feel. She feels like the only positive force in my life in the earlier years. While my siblings helped form memories and action through experience, most of those interactions were negative as well. My mother (whether intentionally or not) would ‘pit’ us against each other and so no positive strong relationship could possibly have been built- at least not by me. I also think that one of the most positive (and negative) things that did happen to me as a child until about the age of fourteen to sixteen was a very strong fantasy life. I think that my creativity and my ‘alter ego’ so to speak helped me to struggle through and sometimes laugh in a life that at sometimes I couldn’t imagine living for or in much longer. In many ways, when I was eighteen I tried to live a life reborn, but found it difficult with the baggage I have carried with me for so many years… and still carry so much of.
I have been dissatisfied with myself in a leadership role in every instance I can think of in my life. Thinking of constructive criticism and experiences with it are nearly impossible for me and I realize that is because all criticism to me is personal. I am not sure there is a way- at least not until recently- to give me criticism in a way that I could truly comprehend it and understand it as a critique on action or thought… and not me as a person. I am not at all convinced that is entirely my fault, but I am unwilling to relinquish responsibility for my biases and prejudices and blame my lack of understanding on anyone else. I also wonder if people were able to feel the anger and hurt underneath and didn’t feel that they had a way to give me constructive feedback. I can remember sometime when I did received feedback (not in a leadership role) and I think that my reaction to it was probably not typical. I remember once getting to go on a church trip without my parents and I was criticized on two things. Once I was told that I should buy as much food with my food card or I would be out by the end of the week. I clearly remember not listening and being a little sad at the end of the week and hungry, but feeling full for a few days and eating what I wanted felt so wonderful that I couldn’t see the criticism as valid… and in some ways I still don’t. That feeling of satisfaction for a few days was truly wonderful and I think of it sometimes when I volunteer at my local food pantry… I wonder if that is one reason I like to volunteer at the local food pantry…? Another time was actually on the same trip (clearly that was a big event in my life! :) and someone whose name is lost to me would correct me every time I ate a bit of food. I guess my teeth would touch my utensil and make a sound. So she would lay her hand on my arm and remind me every time I took a bite of food. My reaction was to not only find no enjoyment in the meal but to stop eating so that I wouldn’t be looked at and I still sometimes attempt to not eat in front of people because I am worried that I don’t look nice while eating and I have poor manners. I think I am still quite a loud eater when I think of it. So I am not sure that if I did get constructive criticism, I would recognize it and be able to recognize what my response to it should be.
I think I have felt that way (the victim) often in my life, but I haven’t called it that or thought of it in that way. I don’t like to feel like a victim; I want to be me and to feel happy and satisfied and successful. I think that sometimes I really don’t understand how not to sometimes. I have been told that I communicate differently than other people and I misunderstand things a lot so I feel very insecure stepping into a strong role. I worry that I will cause difficulty to others or even harm that I didn’t intend to make. I worry that my being me is a problem and maybe it would just be easier to stand back and do what I understand others to tell me to do. That seems so much safer. That way I can get along safely and not be a victim and can find some peace and can give of the talents I think that I have but not hurt other people.
When thinking about whether my earlier experiences constrain or hold me back, the answer is fairly simple. My earlier experiences do constrain me. I may look free and not like I am controlled, but in so many ways I am as confined as someone who has her hands and feet tied and locking in a dark room. If I allow myself to impulsively act, I tend to feel regret or feel that I am told that I am wrong. I do not feel a lot of trust, I am limited by my mind, my allergies and my fear, and so ever circumstance is one that can be used to show me why I am wrong, not a good person, and being part of a team and doing a good job as part of a team is a way to feel successful without a lot of attention on myself. Over the last year I have been trying to understand how to re-frame some of my experiences, but so many of them have so much emotion attached to them and my life feels sort of emotionally unstable right now that I am unsure how to even go about doing that any more.
Labels:
adversity,
change,
experience,
fantasy,
Fear,
introspective,
leader/ leadership,
mental health,
optimism,
pain,
past,
perspective,
resources,
self esteem,
self pity,
story,
struggle,
trust
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