There is no doubt that mental health professionals and other service providers can help alleviate the effects of trauma, torture and other crimes that are perpetrated against people and communities due to circumstances, religion, war, etc... Throughout this class, I have learned quite a bit about the consequences to both individuals and groups based on trauma/ torture and have even broadened my views of how those terms should be defined. Between therapies that are individualized or set up for groups (such as a family, community or people with the same traumas and problems in common) and interactions that attempt to alleviate suffering through the use of medical training, pharmaceuticals, neurobiological or cognitive therapies, etc... Many groups and professional have been focused on – and continue to try- to help victims and the society as a whole heal, develop techniques for survival and daily care, as well as trying to improve the quality of health and life of those affected. However, there can be challenges as well as ethical problems that the mental health / medical provider can face in these situations.
One challenge can come in the form of using pharmaceuticals to help the patient deal with some of the symptoms that cause difficulty in their lives. While studies do suggest that medication makes a bigger impact on an individual's symptoms, the issue is not that black and white. How the patient and/or their family feels about medical care in general (or mental health medication specifically) has an effect on how the medication is used and therefore, how successful it can be. An individual's culture may also weigh into the decision to use medical treatments/ medicine of any kind. And how the services are provided might also affect the utilization of those services. Language, economics, and other barriers can cause misunderstandings and challenges as well. A perfect example of this problem can be found in the book, “The Spirit Catches You and You Fall Down” written by Anne Fadiman. An amazing and very sad biography.
Another thing that is very important for the provider to acknowledge and understand is that the trauma itself may be what the provider wishes to treat and focus on... but the provider is still treating a person. An individual with different perceptions, biases, experiences and other ways of seeing and moving through the world. And so while trying to treat the troublesome symptoms of the past trauma, it is imperative that the person being treated isn't seen in the narrow sense as a label or a diagnosis. The patient needs to be viewed and looked at in the 'prism' of their views and life... so recommendations and therapies need to be available to the patient in a way that fits their current set of circumstance and needs. I thought of an experience in my life when I had a few sick animals who lived with me and my family in a one room yurt. The vet said that one cat needed to be fed a special food, another cat needed a different special food and the other cats couldn't eat either food. When I mentioned that I lived in one room, I was told to deal with it. I did figure out a solution that worked, but it took a while and I didn't use the resources that had been offered nor have I been back to that clinic. I probably would have felt differently and used the resources offered if the provider had made them seem possible. Just a thought on that topic.... So making sure that the resources used are more helpful than stressful and really address the 'whole person' are needed. That takes more time and energy as well as an understanding of an an attempt to put your own biases, etc... aside. That is a bit difficult to do for most of us. :) Also making sure that the resources are available to use in a way that works for the client makes them more likely to be utilized and more likely to help the patient with lasting change in their lives... which is the goal!
Another important element – which I touched on in the last paragraph is to make sure that a thorough understand of the person and their culture are attained. By understanding what is important to the individual and what they use to not only make decisions but base most of what is important in their life on.... the suggestions and recommendations that are given by the mental health providers are more likely to not only be followed but misunderstandings are more likely to be caught quickly and early in the process. That helps develop the trust relationship between the provider and the patient as well as help the patient to work harder to help themselves because not only does it matter to them as individuals, the provider has shown that it matter to them too. (Aren't we all more likely to accomplish our goals when we have a friendly goal 'buddy'?) So by having decent understanding of the background and viewpoint of the patient, the service providers can make fewer but more meaningful referrals and help keep the patient on task. An example is not suggesting a patient with PTSD have an occasional drink to relax but maybe a cookie or a walk with a friend instead. If the culture sees nightmares and terrors as a curse from God that must be overcome.... then they are much less likely to take the Ambien to sleep nor will their family encourage them to do so. Telling an individual to eat pork or stop smoking for their health when smoking is part of their religious practices or the eating of pork is against their beliefs will either cause total noncompliance or partial uncompliance as the patient will only do it when they feel pressed to do so or have another compelling reason to do so. It is important that the clinician recognizes what his values are and recognize when he is potentially pushing values and cultural norms on the patient and not actual treatment. I know those examples are not mental health related, but I thought they did help me make the point I was attempting to make. :)
Another thing that it is imperative that mental health providers think about when dealing with challenged and refugee populations is to follow the information and tools that have work in the past as evidenced by studies and their own observations and life experience, but to also recognize that the current work that is being done can give good insights into potential therapies simply because if it appears to be currently working, with so few good studies out there.... if every is in agreement to try something new... that has the potential to help victims now as well as future populations. This kind of flexibility to look outside the box but also to be cautious and thoughtful about trying therapies that haven't had a lot of use and study is a challenging but needed trait in these providers. It is also this flexibility that allows the clinician to look at the individual in a well rounded way, and not just the way that they have been taught to see certain symptoms or mental distress.
Lastly, it is important that the clinician recognize and maintain clear boundaries between themselves and their patients so that both parties can work together for improvement and satisfaction. When the boundaries are loosened, both parties may find it very challenging to continue to work together and to work towards progress in the manner that was possible when the division between the two was clearly laid out. Providing services that also allow the individual to have privacy not only from strangers who do not have a legitimate need to know their information, but also family can also help the patient by making things clearer and less likely to be misunderstood through another person's biases and thoughts mixing into the mix. An example could be when the parties involved have a language barrier – a translator from outside the patients inner circle may make a different translation that a family member or a friend who may interpret what the patient is saying or needs based on what they think the patient needs... not quite the same thing. This kind of translation can also compromise a patient's need and right for confidentiality making services more challenging for them to get and undermining the trust needed between the patient and the provider. The provider must also to make sure to care for and recognize problems that may crop up with themselves from working with this population and take care to not allow themselves to become burned out or harmed in the process of helping others... which can cause them to be unable to continue to help or even to cause more trauma to the patient.
To be a provider to such a challenged population comes with both risks and rewards for the clinician and the patients. Understanding the important ethical concerns that should be addressed can help everyone involved do a better job, be safer, and to help people gain more resiliency and a better quality of life through the therapies. What more can we ask for? :)
Showing posts with label confidential. Show all posts
Showing posts with label confidential. Show all posts
2013/11/11
Ethical Concerns for Providers when Dealing with Refugee Populations
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2013/02/23
Discussions with a BLS student... February 2013
I wanted to share a ‘conversation’ I had via email this week. As many of you know, I teach BLS (basic life support) in my spare time and one of the benefits I offer my students is that they can contact me by email or phone to ask questions and voice concerns over the time frame that their card is current…so for some students that gives them two years. It doesn’t cost them any more money- it’s just one of the perks that I offer with the class. To be blunt, I rarely hear back from students. Many people take the class for work and are not too stressed as long as they are certified and many just kind of forget as they leave class and go back to their daily business. Every few months, someone will send a letter praising my skills to the hospital and I have also gotten almost universally good evaluations. (I get a ‘bad’ one every few years from one of the local public school English teachers. I was really upset the first time when the evaluation said I was ‘tangentially morbid’, but as he keeps putting it, I have learned to shrug and move on and even laugh about it. The first time he wrote it, I had to look the word up as I had no idea what it meant…which I suspect was also part of his comment. :) However, two weeks ago, I taught a CPR/First Aid class and within three days of the class, my student not only had to use some of the skills I tried to impress on him during the class, but he voiced some really legitimate concerns that I think many of us have in challenging situations. So I thought I would post the ‘conversation.’ I sometimes find trying to address some of my student’s legitimate concerns difficult because I do not feel like I am really a good writer or have an excellent grasp of how to use language to convey feelings and emotions very well. I hope that I did all right…
February 16th, 2013
Hi Sonia,
Your letter confirming training arrived. This afternoon my neighbor called, his wife had fallen, she could not get up and he could not pick her up. He asked if I could come over and help. I've known them for many years, they are both in their late 80's. I went right over. She was on the kitchen floor, her eyes were clear and focused, she said that she did not hurt anyplace only that she did not have the strength to get up. She'd had a brain tumor a couple of years ago and her balance has not been good since, he'd had a heart attack and is no condition to lift more than 5 lbs. I talked with her a while to assess the situation, she seemed to be herself, absolutely clear and lucid. Brought a chair over so that she could steady herself as I picked her up and would not have to move her too far. When she rolled up onto her knees to move I could see the other side of her face there was a large ugly purple spot the size of your palm. She said that she had been to the dermatologist earlier this week and that he had removed a spot, it had not just happened. I put my arms under hers, used my legs to pick her up and she sat down quite easily in the chair.It was tea time, a chance to talk and see how they are doing. The other night she had fallen out of bed and could not get up, they called 911, the ambulance service helped her get back into bed. What they should do is get into an assisted living center - soon, for now they are so entrenched in their home they do not want to go through moving. Getting old is hard. Thank you for the training and the letter,
DP
February 17th , 2013
Wow! That was very quick..... I had a dead phone yesterday so I needed to wait until today but it sounds like you were very helpful and you did the right thing. It doesn't sound like I would have recommended anything different and that was really great of you to help! Did you have any concerns? Did you feel basically prepared and only a little nervous? Is there anything else you wish for me to cover with you....? Anyway, good job and I loved hearing about that!
Sonia G
February 19th, 2013
Hi Sonia,
"Did you have any concerns?" – YES!
Should I being doing this? What If? and still have concerns. The rest of that day and the next day it was still was very much on my mind. More than just this incident - their ability to take care of themselves and that further incidents could cause them pain & suffering. In class the other night you were crystal clear that confidentiality and respect to privacy is paramount. The day after helping them I met a mutual friend and close neighbor in town. I questioned myself as to whether I should say anything or not, I did tell this neighbor about what had happened. It concerns me that I did right or wrong informing this individual about what had happened. As a neighborhood group we have all been very close over the years and helped to take care and watch out for each other through illness and death. Thank you,
DP
February 21st , 2013
So let's chat about that. You are correct- confidentiality and privacy are very, very important. However, there is a loophole in that idea that I didn't really stress so let's go over it. The reason that privacy and confidentiality is so important is that we want people to trust us to give us the information we need to help. However, that information must be given away to others in certain cases. If the patient may cause harm to others, then absolutely we must share the information. If someone is threatening harm to themselves then we must also share that information. We must share it for a few simple reasons, but I think the most important reason is that we cannot allow harm to happen to ourselves... otherwise we become useless to help others. If we keep a secret that later causes us to feel guilt, shame and fear... that causes us to not want to help others anymore... that very much causes harm to ourselves and isn't ok either. So there are legitimate reasons for breaking confidentiality. The situation that you are describing appears to be one of them. If the young lady is likely to continue to fall and to be more likely to get hurt, it is important (if possible) to try with their help to make a plan or come up with ideas to try and develop ways to make the falling less likely. For instance, questioning what the patient feels has caused the last few falls will help a lot. (Does she get dizzy when standing up from sitting, house full of trip hazards, anything situational that consistently puts her at risk?). What then can potentially be changed to help the patient be less likely to fall… You mentioned that her husband can't pick her up if she falls because of his back... Any other family or close friends nearby? One thing that some families and communities have done is to create an informal group for older people in need (this situation is a perfect reason for one). So a small group of like minded, motivated people could talk together and create a plan for helping this family to stay in their home... It sounds like they have no wish to go into assisted living from what you said... So the people in the group would all know each other and have easy contact information for each other. Each person would 'agree' to take a bit of responsibility over the family for a certain amount of time (morning, day, etc...). So they would be available to check on them, visit and help if needed. Once a week or so the group meets either in person or by phone for a few minutes to chat about each person's experiences that week, concerns and any good changes that need to be made- it is awesome if the meetings include the people who need the help. It helps for them to be able to give input on what's working, what's not and what they think they need. Also, a group can share lots of confidential things and when they stay in the group, it’s all good. Does that make sense? Helping your community, the people in it and feeling confident and able to do so is truly the goal... at least for me. I really appreciate your writing and sharing your concerns with me and I hope you will feel more comfortable over time.
To your question of should I be doing this...? Well, that is really up to you. We all have strengths and weaknesses and things that are easy or difficult for each of us. I do not know you very well, but I think I know a few things from our brief time. You are responsible and motivated (you decided you wanted the class, signed up, and even with rescheduling showed up for it. You came with payment, paid attention and asked questions.). You know yourself pretty well (you admitted even when asked a few times that you really probably would never use the book. You felt comfortable being honest about it and didn't feel any concern or need to fib so that I would give you a book and you would toss it later. ). The fact that you feel concerned about these friends/neighbors, etc. suggests you have empathy towards others and concern for their well being and are willing to give of yourself. Some people perform first aid because it makes them feel good about themselves- because they can tell others how wonderful they are and what wonderful things they have done. Your concerns do not appear to be about yourself. You seem concerned with making sure you do the right things and really helping. So it is my thought that you should keep doing this if you feel comfortable enough to try. The more you do it, the more experience will help teach you important things. And over time, many things in your assessment of situations and people will become so easy and just a part of what you do that you will be able to spend more time giving and helping instead of worrying about whether you are remembering everything, etc... Those are just my thoughts though. Please do not think that I am telling you what you must do, etc... I hope I helped answer that question.
What else can I help with? Did this help at all?
Sonia G
February 23rd, 2013
Hi Sonia,
Thank you very much for your thoughtful response to my concerns. It is truly helpful to be able to communicate and receive feedback from someone who understands the causes and roots of concerns such as I had.
Just got off the phone talking with the neighbor who we're concerned about, today they're doing fine. Tomorrow, will go to see them and perhaps have a cup of tea. Over the next few days will talk with a couple of the other neighbors and see if we can come up with a schedule
The days are getting longer ~ Happy photosynthesis!
DP
I really love knowing that everyone in a while, I have a student who has really listened and not just with their head…but with their heart and soul too. They have heard things that I wasn’t even sure that I managed to get out…how do you teach people to have empathy towards others if they do not already have it? I won’t pretend that is a skill I have. Whenever I prepare for a class, I always ask for the spirit to be with me while I am teaching so that the important parts of my message can be discerned and not lost in my 'hyper-whirlwind' that I call me. I am so grateful for these skills and I am so glad that they can help others and give me satisfaction and joy too! Can’t wait for my next class!
February 16th, 2013
Hi Sonia,
Your letter confirming training arrived. This afternoon my neighbor called, his wife had fallen, she could not get up and he could not pick her up. He asked if I could come over and help. I've known them for many years, they are both in their late 80's. I went right over. She was on the kitchen floor, her eyes were clear and focused, she said that she did not hurt anyplace only that she did not have the strength to get up. She'd had a brain tumor a couple of years ago and her balance has not been good since, he'd had a heart attack and is no condition to lift more than 5 lbs. I talked with her a while to assess the situation, she seemed to be herself, absolutely clear and lucid. Brought a chair over so that she could steady herself as I picked her up and would not have to move her too far. When she rolled up onto her knees to move I could see the other side of her face there was a large ugly purple spot the size of your palm. She said that she had been to the dermatologist earlier this week and that he had removed a spot, it had not just happened. I put my arms under hers, used my legs to pick her up and she sat down quite easily in the chair.It was tea time, a chance to talk and see how they are doing. The other night she had fallen out of bed and could not get up, they called 911, the ambulance service helped her get back into bed. What they should do is get into an assisted living center - soon, for now they are so entrenched in their home they do not want to go through moving. Getting old is hard. Thank you for the training and the letter,
DP
February 17th , 2013
Wow! That was very quick..... I had a dead phone yesterday so I needed to wait until today but it sounds like you were very helpful and you did the right thing. It doesn't sound like I would have recommended anything different and that was really great of you to help! Did you have any concerns? Did you feel basically prepared and only a little nervous? Is there anything else you wish for me to cover with you....? Anyway, good job and I loved hearing about that!
Sonia G
February 19th, 2013
Hi Sonia,
"Did you have any concerns?" – YES!
Should I being doing this? What If? and still have concerns. The rest of that day and the next day it was still was very much on my mind. More than just this incident - their ability to take care of themselves and that further incidents could cause them pain & suffering. In class the other night you were crystal clear that confidentiality and respect to privacy is paramount. The day after helping them I met a mutual friend and close neighbor in town. I questioned myself as to whether I should say anything or not, I did tell this neighbor about what had happened. It concerns me that I did right or wrong informing this individual about what had happened. As a neighborhood group we have all been very close over the years and helped to take care and watch out for each other through illness and death. Thank you,
DP
February 21st , 2013
So let's chat about that. You are correct- confidentiality and privacy are very, very important. However, there is a loophole in that idea that I didn't really stress so let's go over it. The reason that privacy and confidentiality is so important is that we want people to trust us to give us the information we need to help. However, that information must be given away to others in certain cases. If the patient may cause harm to others, then absolutely we must share the information. If someone is threatening harm to themselves then we must also share that information. We must share it for a few simple reasons, but I think the most important reason is that we cannot allow harm to happen to ourselves... otherwise we become useless to help others. If we keep a secret that later causes us to feel guilt, shame and fear... that causes us to not want to help others anymore... that very much causes harm to ourselves and isn't ok either. So there are legitimate reasons for breaking confidentiality. The situation that you are describing appears to be one of them. If the young lady is likely to continue to fall and to be more likely to get hurt, it is important (if possible) to try with their help to make a plan or come up with ideas to try and develop ways to make the falling less likely. For instance, questioning what the patient feels has caused the last few falls will help a lot. (Does she get dizzy when standing up from sitting, house full of trip hazards, anything situational that consistently puts her at risk?). What then can potentially be changed to help the patient be less likely to fall… You mentioned that her husband can't pick her up if she falls because of his back... Any other family or close friends nearby? One thing that some families and communities have done is to create an informal group for older people in need (this situation is a perfect reason for one). So a small group of like minded, motivated people could talk together and create a plan for helping this family to stay in their home... It sounds like they have no wish to go into assisted living from what you said... So the people in the group would all know each other and have easy contact information for each other. Each person would 'agree' to take a bit of responsibility over the family for a certain amount of time (morning, day, etc...). So they would be available to check on them, visit and help if needed. Once a week or so the group meets either in person or by phone for a few minutes to chat about each person's experiences that week, concerns and any good changes that need to be made- it is awesome if the meetings include the people who need the help. It helps for them to be able to give input on what's working, what's not and what they think they need. Also, a group can share lots of confidential things and when they stay in the group, it’s all good. Does that make sense? Helping your community, the people in it and feeling confident and able to do so is truly the goal... at least for me. I really appreciate your writing and sharing your concerns with me and I hope you will feel more comfortable over time.
To your question of should I be doing this...? Well, that is really up to you. We all have strengths and weaknesses and things that are easy or difficult for each of us. I do not know you very well, but I think I know a few things from our brief time. You are responsible and motivated (you decided you wanted the class, signed up, and even with rescheduling showed up for it. You came with payment, paid attention and asked questions.). You know yourself pretty well (you admitted even when asked a few times that you really probably would never use the book. You felt comfortable being honest about it and didn't feel any concern or need to fib so that I would give you a book and you would toss it later. ). The fact that you feel concerned about these friends/neighbors, etc. suggests you have empathy towards others and concern for their well being and are willing to give of yourself. Some people perform first aid because it makes them feel good about themselves- because they can tell others how wonderful they are and what wonderful things they have done. Your concerns do not appear to be about yourself. You seem concerned with making sure you do the right things and really helping. So it is my thought that you should keep doing this if you feel comfortable enough to try. The more you do it, the more experience will help teach you important things. And over time, many things in your assessment of situations and people will become so easy and just a part of what you do that you will be able to spend more time giving and helping instead of worrying about whether you are remembering everything, etc... Those are just my thoughts though. Please do not think that I am telling you what you must do, etc... I hope I helped answer that question.
What else can I help with? Did this help at all?
Sonia G
February 23rd, 2013
Hi Sonia,
Thank you very much for your thoughtful response to my concerns. It is truly helpful to be able to communicate and receive feedback from someone who understands the causes and roots of concerns such as I had.
Just got off the phone talking with the neighbor who we're concerned about, today they're doing fine. Tomorrow, will go to see them and perhaps have a cup of tea. Over the next few days will talk with a couple of the other neighbors and see if we can come up with a schedule
The days are getting longer ~ Happy photosynthesis!
DP
I really love knowing that everyone in a while, I have a student who has really listened and not just with their head…but with their heart and soul too. They have heard things that I wasn’t even sure that I managed to get out…how do you teach people to have empathy towards others if they do not already have it? I won’t pretend that is a skill I have. Whenever I prepare for a class, I always ask for the spirit to be with me while I am teaching so that the important parts of my message can be discerned and not lost in my 'hyper-whirlwind' that I call me. I am so grateful for these skills and I am so glad that they can help others and give me satisfaction and joy too! Can’t wait for my next class!
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