Catch Up

Whew! Sometimes life just sneaks up on you. I feel like I will be coasting along pretty well for a bit and then the world tips slightly and everything slides to the side and falls down. Then I end up spending way too much time trying to pick everything back up and level up my life again. IT doesn't necessarily mean that everything is bad, just a jumble of positive and negative tumbled together that needs to be carefully winnowed out and restored to its appropriate place in my life. These times are hard but something I try to be thankful for. After all, these times help define our goals and then our lives. You never learn as much as you do when you are trying to evaluate what is important and necessary and what must be laid aside... no matter how important it still feels to you. The Buddhist principle of impermanence is a wonderful thing to learn even if it isn't a principle that is the slightest bit easy or comfortable... at least its not for me.

Overall, things are going OK. Finances are still pretty shaky and I am not fully stable as I would like to be in that regard. However, I have plenty to eat and my insurance is covering the majority of my medical bills- I can't fathom what I would do without insurance with my health problems. Just this month alone I have six appointment and 2 MRIs. My monthly doctor's visits would put me into bankruptcy if I didn't have insurance. Having Ehler's Danlos can be a bit of a trial sometimes and having insurance really is critical fro a decent quality of life. I am very grateful that I do have health insurance and wish that this country could get it together and provide single payer healthcare. No one should have to go without healthcare due to expense.

I am back to wearing a brace on my left ankle as it doesn't want to stay fully in its socket. The brace is controlling it well so I tend to have moments that I forget I am dealing with that problem. I have learned not to sit on it or to sit indian style- those are errors I will pay for fairly quickly both in inappropriate joint movement and pain. I also am trying to learn to pivot more slowly instead of quick turning 'jolts' to change direction.

MY car has been fixed and for the moment the fuzzy parts of the household are healthy. Watson passed away last weekend and that has been a sad experience- I still feel like I can see him lope along in my peripheral vision when I am moving throughout the house. However, everyone that was very ill has passed on at this point and I am hopeful for a period of time of good health for me and my fuzzy companions.

Sleep has improved a bit which is helpful. I would definitely prefer better sleep every day- the nightmares are not helpful most nights. However, they are improving or at least I'm having fewer of them... that's progress! Sometimes when I wake up from a nightmare, I hear the lyrics of a BareNaked Ladies song in my head:

I wake up scared. I wake up strange. Its the hair shirt I wear. This hair shirt is woven from your brown hair. This song is the cross that I bear... bear with me... bear with me... - "What a Good Boy"

Strange lyrics for strange dreams I guess...

I hate when I get so busy that I do not write. I really like writing. I should do it more.

Zombie Debt

There are many different ways to discuss and label debt- student, credit, medical, etc... One form of debt that isn't talked about much is Zombie debt. I ended up spending a few hours on the phone today between hospitals and insurances and have found myself the new and proud owner of medical debt... from 2015. So two months ago it didn't exist... and now it does. It certainly messes with your budget to have to reconfigure how you spend money based on information that you couldn't have had when you made it. Learning that more of these unknown expenses are probably headed my way as my health insurance *still* hasn't paid on these bills for the last two years doesn't really feel great. And while I thought about it and what choices I need to make, I thought about the term 'zombie debt' and how I originally had heard it. So here is a clip to the show "Last Week Tonight" discussing medical debt and debt buying organizations.

https://www.youtube.com/watch?v=hxUAntt1z2c

Paying off my 'new' medical debt won't be fun, but it could certainly be worse. I could have the experience of many of the people mentioned in this episode. I guess it might be a valuable thing for everyone to remember- even if you have insurance and they should pay the bill.... if they don't, you are still on the hook. There are no exceptions. Medical debt also is treated as bad debt by credit reporting companies even though people can not help becoming sick in the vast majority of cases. I wish I had fewer health problems and I confess... even though I have insurance now (and had at the time of my 'new' debt) my gut reaction is to stop going to the doctor because I have no idea if in two years I will have to pay for the visit, procedure, etc... I dearly hope for single payer/ universal healthcare for the next generation. It is needed for so many reasons.

Sigh... maybe someday.

Self Care.... Filled with Hormones

I have been struggling this semester. I think there are a few reasons including feeling a lot less motivation with the loss of my grandpa, work health problems... the usual suspects. I tried to work on some homework but I seem to be unable to concentrate on either history nor interdisciplinary studies so I found myself roaming my shelves for something to read. I have agreed to try and take some time for self care- I'm quite terrible at it and I am working to do a little better- and I have decided that some of my self care should include stretching and fun reading. My eyes slid down the rows of books and then stopped on my nutrition textbook. I have never been willing to get rid of it because I sometimes find myself using it as a resource for trying to understand comments from my doctor better or even as a resource for a history paper. So, amusingly enough I hauled it to the couch (We can't say I picked it up because it's huge) for a bit of 'light, restful reading. I found myself quite frustrated by the reading so please take that in mind when I discuss my thoughts below... I guess it wasn't very restful reading.

I entered this chapter with little knowledge about hormones and how they affect the average person’s body, and by extension, my own. I have listened to doctors chatting about my hormones to my parents from about the age of 14 onward. In almost every doctor’s appointment that I attend as well as incidental evidence in my own life, my hormones are in control of me… and not me of them. I see menstruation and the whole process of hormones in a very negative light. As early as 18 years old I wanted to get a hysterectomy to try and end at least part of the process. The only thing that has stopped me from a hysterectomy is money... and if I was offered the opportunity to have it done tomorrow and have it paid for...I would not hesitate at all. As mentioned in the text, some of the societal and cultural ideas around menstruation are definitely alive in my mind for I too believe that I am filthier and more disgusting during the time of my menstruation and I want to avoid people and try to do anything I can to hide it. I don't talk about it much and I used to go to great lengths to hide any evidence including sanitary supplies from any one in my home- I even used to hide it from my husband when I was married... which was challenging and sure looks foolish from where I stand now. The way I think sure has changed... as evidenced that I am try to talk about it here. I found myself a bit bemused to read the words on the pages in front of me such as “One Indian phrase for menstruation is the flower growing in the house of the god of love” and “when researchers looked for positive changes in the premenstrual phase, they can find those as well." I haven't found those yet I guess.

The chapter listed a lot of research on women's health as well as hormones and sexuality. I suspect that the reason there appears to be so much research focused towards these topics is that hormonal changes are seen as an overall negative in quality of life for the majority of women. As Americans live in a fairly patriarchal society and women are not seen or treated in many cases as equal to men, focusing on the differences- and perceived negative differences- makes perfect sense. In general, if we look for the bad over the good that is what we will find. As a history buff, the discussion of women, women’s health, and sexuality have been seen in a negative light throughout many cultures and ages in time. The text also mentions that religion can also play a role in how hormonal changes, menstruation and reproductive activities are viewed and treated. It seems clear to me that many cultures and religions view the unique actions of women's bodies as problematic and use social pressure to control these actions, using members of both genders to create and reinforce this pressure. Another thing that most people who practice medicine have noticed that wasn’t mentioned in the text is that there is gender bias when it comes to many serious problems such as pain, heart attack, etc. How a person is treated when experiencing these disorders can vary widely based on the gender of the person experiencing them and that bias tends to create more negative outcomes for women than for men. What these facts and ideas say about our culture are not great. If the perspectives and biases in our culture and society tend to be more negative towards women, their health and potential in our society, it shouldn’t come as a shock that more studies are focused on the negative aspects of women and their health when research is being discussed, funded, and developed. If society sees men unconsciously as physically better and less hormonal as the male gender has no outward appearance of hormonal changes as stated in the text, then it also makes sense that research is much less likely to turn its focus toward men. Research in general tends to start with the spark of an idea on how something works, an idea of how to change something, or even how to fix a problem or perceived difficulty. If a culture in general is unable to recognize that men’s hormonal cycles exist or that they are important, no funding or time is going to be focused on that as it will be seen as waste of time and resources. I think that creates difficulty for both genders as men’s health and experience is ignored or undervalued so that problems are not recognized and potentially helped and women find that that their health and the study of their health is focused more on the negative aspects of it – or perceived negative aspects- and less on the positive traits and aspects of the health differences.

If more research was focused towards men and their health as well as hormonal cycles, I believe that we could gain knowledge that could be quite beneficial for men and the health problems that occur for them. However, it must be acknowledged that the majority of all medical research is focused on men- just not hormonal research- and it is vital to start including women in these processes. Excuses for leaving women out of health studies include the perceived 'variability' of their hormone cycle and the 'uniqueness' of the female body's functions... which feels a bit like a cope out. After all, the majority of all of our bodies- male and female- work and respond the same in similar circumstances.

I am not sure that reading this was really good self care or if I found myself distracted and worked up about something that really isn't super relevant to my life right now. But I found a few things that I was interested in researching at some point. I wonder how much of my health problems is based on some of the external influences the text mentioned. Do I feel more pain because of hormonal changes or because I feel like I ‘should’? Do I feel dirty and awful because of my sensory disorders which cause challenges with the physical sensations… or do I feel that way because I have been taught/ influenced to feel that way? Are the mental symptoms of confusion and personality ‘changes’ really a part of the hormonal changes, part of what I expect to happen, or pieces of both intertwined in the perspective and package of me? Certainly interesting questions to ponder this evening. Although the ponder must end soon as the guys are headed over. :D

What are your thoughts?